A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults

Jaheeda Gangannagaripalli; Andrea Albagli; Stacie N. Myers; Sarah Whittaker; Andria Joseph; Anna Clarke; Lucy Matkin; Jordi Alonso; Ira Byock; Michael van den Berg; Carolyn Canfield; John Chaplin; Juan Dapueto; Marcelo Pio de Almedia Fleck; Chris Sidey-Gibbons; Jan Hazelzet; Rachel Hess; Kaisa Immonen; Serena Joyner; Catherine Katz; Carolyn Kerrigan; Cindy Lam; Joanne Lunn; Fiona McKenzie; Alastair Roeves; Caleb Stowell; Timothy Switaj; Melissa Tinsley; Eyal Zimlichman; Jose M. Valderas

doi:10.1007/s40271-021-00554-8

A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults

Jaheeda Gangannagaripalli, Andrea Albagli, Stacie N. Myers, Sarah Whittaker, Andria Joseph, Anna Clarke, Lucy Matkin, Jordi Alonso, Ira Byock, Michael van den Berg, Carolyn Canfield, John Chaplin, Juan Dapueto, Marcelo Pio de Almedia Fleck, Chris Sidey-Gibbons, Jan Hazelzet, Rachel Hess, Kaisa Immonen, Serena Joyner, Catherine KatzCarolyn Kerrigan, Cindy Lam, Joanne Lunn, Fiona McKenzie, Alastair Roeves, Caleb Stowell, Timothy Switaj, Melissa Tinsley, Eyal Zimlichman, Jose M. Valderas^*

^*Corresponding author for this work

Public Health

Research output: Contribution to journal › Article › Academic › peer-review

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Abstract

Background: The definition of population-specific outcomes is an essential precondition for the implementation of value-based health care. We developed a minimum standard outcome set for overall adult health (OAH) to facilitate the implementation of value-based health care in tracking, comparing, and improving overall health care outcomes of adults across multiple conditions, which would be of particular relevance for primary care and public health populations. Methods: The International Consortium for Health Outcomes Measurement (ICHOM) convened an international panel (patients, clinicians, and topic experts). Following the development of a conceptual framework, a modified Delphi method (supported by public consultations) was implemented to identify, in sequence, the relevant domains, the best instruments for measuring them, the timing of measurement, and the relevant adjustment variables. Findings: Outcomes were identified in relation to overall health status and the domains of physical, mental, and social health. Three instruments covering these domains were identified: PROMIS Scale v1.2—Global Health (10 items), WHO Wellbeing Index (5 items), and the WHO Disability Assessment Schedule 2.0 (12 items). Case-mix variables included a range of sociodemographic and biometric measures. Yearly measurement was proposed for all outcomes and most case-mix variables. Interpretation: The ICHOM OAH Standard Set has been developed through consensus-based methods based on predefined criteria following high standards for the identification and selection of high-quality measures The involvements of a wide range of stakeholders supports the acceptability of the set, which is readily available for use and feasibility testing in clinical settings.

Original language	English
Pages (from-to)	341-351
Number of pages	11
Journal	Patient
Volume	15
Issue number	3
Early online date	1 Nov 2021
DOIs	https://doi.org/10.1007/s40271-021-00554-8
Publication status	Published - May 2022

Bibliographical note

Funding Information:
The authors thank all patients and professionals participating in the patient surveys. The International Society for Quality-of-Life Research provided support as part of a collaboration with ICHOM for supporting best methods in the identification, selection, and implementation of patient-reported outcomes. The views expressed herein are those of the author(s) and do not reflect the official policy or position of Brooke Army Medical Center, the US Army Medical Department, the US Army Office of the Surgeon General, the Department of the Army, the Department of the Air Force, the Department of Defense, or the US Government.

Funding Information:
This work was supported through sponsorship from the NSW Agency for Clinical Innovation, NHS Wales HCF Research Foundation, and Providence Health Care.

Publisher Copyright:
© 2021, The Author(s).

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in AdultsFinal published version, 1.08 MBLicence: CC BY-NC

Cite this

Gangannagaripalli, J., Albagli, A., Myers, S. N., Whittaker, S., Joseph, A., Clarke, A., Matkin, L., Alonso, J., Byock, I., van den Berg, M., Canfield, C., Chaplin, J., Dapueto, J., de Almedia Fleck, M. P., Sidey-Gibbons, C., Hazelzet, J., Hess, R., Immonen, K., Joyner, S., ... Valderas, J. M. (2022). A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults. Patient, 15(3), 341-351. https://doi.org/10.1007/s40271-021-00554-8

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title = "A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults",

abstract = "Background: The definition of population-specific outcomes is an essential precondition for the implementation of value-based health care. We developed a minimum standard outcome set for overall adult health (OAH) to facilitate the implementation of value-based health care in tracking, comparing, and improving overall health care outcomes of adults across multiple conditions, which would be of particular relevance for primary care and public health populations. Methods: The International Consortium for Health Outcomes Measurement (ICHOM) convened an international panel (patients, clinicians, and topic experts). Following the development of a conceptual framework, a modified Delphi method (supported by public consultations) was implemented to identify, in sequence, the relevant domains, the best instruments for measuring them, the timing of measurement, and the relevant adjustment variables. Findings: Outcomes were identified in relation to overall health status and the domains of physical, mental, and social health. Three instruments covering these domains were identified: PROMIS Scale v1.2—Global Health (10 items), WHO Wellbeing Index (5 items), and the WHO Disability Assessment Schedule 2.0 (12 items). Case-mix variables included a range of sociodemographic and biometric measures. Yearly measurement was proposed for all outcomes and most case-mix variables. Interpretation: The ICHOM OAH Standard Set has been developed through consensus-based methods based on predefined criteria following high standards for the identification and selection of high-quality measures The involvements of a wide range of stakeholders supports the acceptability of the set, which is readily available for use and feasibility testing in clinical settings.",

author = "Jaheeda Gangannagaripalli and Andrea Albagli and Myers, {Stacie N.} and Sarah Whittaker and Andria Joseph and Anna Clarke and Lucy Matkin and Jordi Alonso and Ira Byock and {van den Berg}, Michael and Carolyn Canfield and John Chaplin and Juan Dapueto and {de Almedia Fleck}, {Marcelo Pio} and Chris Sidey-Gibbons and Jan Hazelzet and Rachel Hess and Kaisa Immonen and Serena Joyner and Catherine Katz and Carolyn Kerrigan and Cindy Lam and Joanne Lunn and Fiona McKenzie and Alastair Roeves and Caleb Stowell and Timothy Switaj and Melissa Tinsley and Eyal Zimlichman and Valderas, {Jose M.}",

note = "Funding Information: The authors thank all patients and professionals participating in the patient surveys. The International Society for Quality-of-Life Research provided support as part of a collaboration with ICHOM for supporting best methods in the identification, selection, and implementation of patient-reported outcomes. The views expressed herein are those of the author(s) and do not reflect the official policy or position of Brooke Army Medical Center, the US Army Medical Department, the US Army Office of the Surgeon General, the Department of the Army, the Department of the Air Force, the Department of Defense, or the US Government. Funding Information: This work was supported through sponsorship from the NSW Agency for Clinical Innovation, NHS Wales HCF Research Foundation, and Providence Health Care. Publisher Copyright: {\textcopyright} 2021, The Author(s).",

year = "2022",

month = may,

doi = "10.1007/s40271-021-00554-8",

language = "English",

volume = "15",

pages = "341--351",

journal = "Patient",

issn = "1178-1653",

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Gangannagaripalli, J, Albagli, A, Myers, SN, Whittaker, S, Joseph, A, Clarke, A, Matkin, L, Alonso, J, Byock, I, van den Berg, M, Canfield, C, Chaplin, J, Dapueto, J, de Almedia Fleck, MP, Sidey-Gibbons, C, Hazelzet, J, Hess, R, Immonen, K, Joyner, S, Katz, C, Kerrigan, C, Lam, C, Lunn, J, McKenzie, F, Roeves, A, Stowell, C, Switaj, T, Tinsley, M, Zimlichman, E & Valderas, JM 2022, 'A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults', Patient, vol. 15, no. 3, pp. 341-351. https://doi.org/10.1007/s40271-021-00554-8

TY - JOUR

T1 - A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults

AU - Gangannagaripalli, Jaheeda

AU - Albagli, Andrea

AU - Myers, Stacie N.

AU - Whittaker, Sarah

AU - Joseph, Andria

AU - Clarke, Anna

AU - Matkin, Lucy

AU - Alonso, Jordi

AU - Byock, Ira

AU - van den Berg, Michael

AU - Canfield, Carolyn

AU - Chaplin, John

AU - Dapueto, Juan

AU - de Almedia Fleck, Marcelo Pio

AU - Sidey-Gibbons, Chris

AU - Hazelzet, Jan

AU - Hess, Rachel

AU - Immonen, Kaisa

AU - Joyner, Serena

AU - Katz, Catherine

AU - Kerrigan, Carolyn

AU - Lam, Cindy

AU - Lunn, Joanne

AU - McKenzie, Fiona

AU - Roeves, Alastair

AU - Stowell, Caleb

AU - Switaj, Timothy

AU - Tinsley, Melissa

AU - Zimlichman, Eyal

AU - Valderas, Jose M.

N1 - Funding Information: The authors thank all patients and professionals participating in the patient surveys. The International Society for Quality-of-Life Research provided support as part of a collaboration with ICHOM for supporting best methods in the identification, selection, and implementation of patient-reported outcomes. The views expressed herein are those of the author(s) and do not reflect the official policy or position of Brooke Army Medical Center, the US Army Medical Department, the US Army Office of the Surgeon General, the Department of the Army, the Department of the Air Force, the Department of Defense, or the US Government. Funding Information: This work was supported through sponsorship from the NSW Agency for Clinical Innovation, NHS Wales HCF Research Foundation, and Providence Health Care. Publisher Copyright: © 2021, The Author(s).

PY - 2022/5

Y1 - 2022/5

N2 - Background: The definition of population-specific outcomes is an essential precondition for the implementation of value-based health care. We developed a minimum standard outcome set for overall adult health (OAH) to facilitate the implementation of value-based health care in tracking, comparing, and improving overall health care outcomes of adults across multiple conditions, which would be of particular relevance for primary care and public health populations. Methods: The International Consortium for Health Outcomes Measurement (ICHOM) convened an international panel (patients, clinicians, and topic experts). Following the development of a conceptual framework, a modified Delphi method (supported by public consultations) was implemented to identify, in sequence, the relevant domains, the best instruments for measuring them, the timing of measurement, and the relevant adjustment variables. Findings: Outcomes were identified in relation to overall health status and the domains of physical, mental, and social health. Three instruments covering these domains were identified: PROMIS Scale v1.2—Global Health (10 items), WHO Wellbeing Index (5 items), and the WHO Disability Assessment Schedule 2.0 (12 items). Case-mix variables included a range of sociodemographic and biometric measures. Yearly measurement was proposed for all outcomes and most case-mix variables. Interpretation: The ICHOM OAH Standard Set has been developed through consensus-based methods based on predefined criteria following high standards for the identification and selection of high-quality measures The involvements of a wide range of stakeholders supports the acceptability of the set, which is readily available for use and feasibility testing in clinical settings.

AB - Background: The definition of population-specific outcomes is an essential precondition for the implementation of value-based health care. We developed a minimum standard outcome set for overall adult health (OAH) to facilitate the implementation of value-based health care in tracking, comparing, and improving overall health care outcomes of adults across multiple conditions, which would be of particular relevance for primary care and public health populations. Methods: The International Consortium for Health Outcomes Measurement (ICHOM) convened an international panel (patients, clinicians, and topic experts). Following the development of a conceptual framework, a modified Delphi method (supported by public consultations) was implemented to identify, in sequence, the relevant domains, the best instruments for measuring them, the timing of measurement, and the relevant adjustment variables. Findings: Outcomes were identified in relation to overall health status and the domains of physical, mental, and social health. Three instruments covering these domains were identified: PROMIS Scale v1.2—Global Health (10 items), WHO Wellbeing Index (5 items), and the WHO Disability Assessment Schedule 2.0 (12 items). Case-mix variables included a range of sociodemographic and biometric measures. Yearly measurement was proposed for all outcomes and most case-mix variables. Interpretation: The ICHOM OAH Standard Set has been developed through consensus-based methods based on predefined criteria following high standards for the identification and selection of high-quality measures The involvements of a wide range of stakeholders supports the acceptability of the set, which is readily available for use and feasibility testing in clinical settings.

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DO - 10.1007/s40271-021-00554-8

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VL - 15

SP - 341

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JO - Patient

JF - Patient

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A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults

Abstract

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