A view from the clinic – Perspectives from Dutch patients and professionals on high myopia care

Monica Ravenstijn, Gerlof du Bois, Ritsert C. Jansen, Chang Liu, Gregorius P.M. Luyten, Redmer van Leeuwen, Mor M. Dickman, Nic J. Reus, Suzanne Yzer, Caroline C.W. Klaver*

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

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Abstract

Purpose: To understand and compare perspectives of patients and professionals on current ophthalmologic care for high myopia, and to identify challenges and future opportunities. Methods: Self-reported data were collected through two online questionnaires. Patient perspective was obtained from highly myopic members of a patient organisation based in the Netherlands using a 17-item questionnaire consisting of open and multiple-choice questions regarding personal experience with myopia care. The ophthalmologist perspective was obtained from practising Dutch ophthalmologists with a 12-item questionnaire of multiple-choice questions on work-related demographics, myopia care in daily practice and need for improvement. The response rate for patients was 27% (n = 136/500) and for ophthalmologists, 24% (n = 169/716). Results: Patients were highly concerned about personal progressive loss of vision (69%) and feared their psychological well-being (82%) in case this would happen. The quality of performance of care provided by ophthalmologists was rated as excellent or satisfactory by 64% of the patients. These ratings for multidisciplinary care and insurance reimbursement were as low as 28% and 18% respectively. The mean concern among ophthalmologists about the rise in high myopia was 6.9 (SEM 0.1) on a 10-point scale. Sixty-nine per cent of the ophthalmologists reported that asymptomatic myopic patients should not be examined regularly at outpatient clinics. Ophthalmologists urged the development of clinical guidelines (74%), but did report (95%) that they informed patients about risk factors and complications. This contrasted with the view of patients, of whom 42% were discontent with information provided by ophthalmologists. Conclusions: These questionnaires demonstrated that the current clinical care delivered to highly myopic patients is in need of improvement. The expected higher demand for myopia care in the near future requires preferred practice patterns, professionals specifically trained to manage myopic pathology, accurate and comprehensive information exchange and collaboration of in- and out-of-hospital professionals across the full eye care chain.

Original languageEnglish
Pages (from-to)327-336
Number of pages10
JournalOphthalmic and Physiological Optics
Volume43
Issue number3
DOIs
Publication statusPublished - May 2023

Bibliographical note

Funding Information:
This research was supported by Oogfonds, Landelijke Stichting voor Blinden en Slechtzienden, Algemene Nederlandse Vereniging Ter Voorkoming Van Blindheid and Stichting Beheer ‘t Schild through Uitzicht (2019‐14), Rotterdamse Stichting Blindenbelangen (20190034) and Stichting Wetenschappelijk Onderzoek Oogziekenhuis (2019S06). CCW Klaver obtained funding from the Netherlands Organisation for Scientific Research (NWO, grant 91815655), and from the European Research Council (ERC) under the European Union's Horizon 2020 research and innovation programme (grant 648268).

Funding Information:
The authors wish to thank the 169 participants in the ophthalmologists' survey, the 136 participants in the patient's survey and the Netherlands Eye Association. The authors also wish to thank Jeannet Kikkert, Anne Niessen, Gerdie Mevissen, Britt Roskam and Anja de Vuyst, board members of the myopia patient society, for categorising answers to open questions.

Publisher Copyright:
© 2023 The Authors. Ophthalmic and Physiological Optics published by John Wiley & Sons Ltd on behalf of College of Optometrists.

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