Caregiver Burden, Psychological Distress and Quality of Life among Informal Caregivers of Patients with Head and Neck Cancer: A Longitudinal Study

Kira S. Van Hof*, Arta Hoesseini, Maarten C. Dorr, Irma M. Verdonck-de Leeuw, Femke Jansen, C. René Leemans, Robert P. Takes, Chris H.J. Terhaard, Robert Jan Baatenburg de Jong, Aniel Sewnaik, Marinella P.J. Offerman

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

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Abstract

(1) Background: The aim of this study was to investigate caregiver burden among informal caregivers of head and neck cancer patients, in relation to distress and quality of life (QoL), and the relationship between informal caregivers and patients.

(2) Methods: Data of 234 dyads from the multicenter prospective cohort study Netherlands Quality of life and Biomedical Cohort studies in cancer was used. Caregiver burden, psychological distress, global QoL, physical and social functioning were measured from baseline until 24 months after treatment.

(4) Conclusions: This prospective cohort study shows the high burden of caring for HNC patients, the impact of this burden and the interaction between caregiver and patient. We suggest that healthcare professionals include caregivers in counseling and support.

Original languageEnglish
Article number16304
JournalInternational Journal of Environmental Research and Public Health
Volume19
Issue number23
DOIs
Publication statusPublished - 5 Dec 2022

Bibliographical note

Funding Information: This research used data from The Netherlands Quality of life and Biomedical Cohort study in head and neck cancer (NET-QUBIC) project funded by the Dutch Cancer Society, Grant/Award Number: VU 2013–593.

Publisher Copyright: © 2022 by the authors.

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