TY - JOUR
T1 - Caring for Children with an Autism Spectrum Disorder
T2 - Factors Associating with Health- and Care-Related Quality of Life of the Caregivers
AU - ten Hoopen, L.W.
AU - de Nijs, P.F.A. (Pieter)
AU - Duvekot, J. (Jorieke)
AU - Greaves-Lord, K. (Kirstin)
AU - Hillegers, M.H.J. (Manon)
AU - Brouwer, WBF (Werner)
AU - Hakkaart - van Roijen, L (Leona)
N1 - Acknowledgments: The Social Spectrum Study was funded by the
Sophia Foundation for Scientifc Research (SSWO project number
958). The Social Spectrum Study was conducted by the Erasmus Medical Center in collaboration with Emergis, GGZ WNB, Lucertis, Riagg
Rijnmond, and Yulius. Also, the authors gratefully acknowledge the
families that participated in the study and the graduate students and
research assistants who assisted in our research.
PY - 2021
Y1 - 2021
N2 - This study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively assess health-related QoL and care-related QoL. Health-related QoL was associated with the caregiver’s internalizing problems and adaptive coping, explaining 38% of the variance. Parenting stress and adaptive coping were associated with the care-related QoL and explained 60% of the variance. Child variables were not associated with the caregiver’s health- and care-related QoL if caregiver and caregiving variables were taken into account. Findings indicate the importance of the caregiver’s mental health, coping, and parenting stress in caring for children with ASD.
AB - This study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively assess health-related QoL and care-related QoL. Health-related QoL was associated with the caregiver’s internalizing problems and adaptive coping, explaining 38% of the variance. Parenting stress and adaptive coping were associated with the care-related QoL and explained 60% of the variance. Child variables were not associated with the caregiver’s health- and care-related QoL if caregiver and caregiving variables were taken into account. Findings indicate the importance of the caregiver’s mental health, coping, and parenting stress in caring for children with ASD.
UR - http://www.scopus.com/inward/record.url?scp=85118320790&partnerID=8YFLogxK
U2 - 10.1007/s10803-021-05336-7
DO - 10.1007/s10803-021-05336-7
M3 - Article
AN - SCOPUS:85118320790
JO - Journal of Autism and Developmental Disorders
JF - Journal of Autism and Developmental Disorders
SN - 0162-3257
ER -
