Co-creating an empowering health education intervention for urological cancer patients

Violet Petit-Steeghs*, Carina A.C.M. Pittens, Jurriaan Oosterman, Jacqueline E.W. Broerse

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

2 Citations (Scopus)
35 Downloads (Pure)

Abstract

Objective: The effectiveness of health education for patients has often been suboptimal. The neglect of a focus on empowerment and the presence of implementation barriers have been put forward as possible explanations for this. This study aimed to gain insight into how to co-create and develop an empowerment theory-based health education intervention for urological cancer patients. Design: Bravo’s empowerment intervention model provided the theoretical foundations for the work undertaken with urological cancer patients in the Netherlands, using a participatory interactive learning and action approach. Method: Insights into needs regarding health education were obtained through semi-structured interviews with patients (n = 22) and health professionals (n = 17). Subsequently, eight co-creation sessions (n = 30) were organised to translate these needs into a health education intervention. Results: An intervention in the form of digital patient information was developed. The information offered provides a view of the different care steps based on clinical guidelines but personalised in different ways. By connecting patients’ empowerment needs to the information provided, and by taking health professionals’ perspectives into account, barriers to health education were made visible and addressed. Conclusion: Patient empowerment theory proved valuable in better aligning a participatory research process with the empowerment needs of urological cancer patients. The programme theory developed may offer a valuable template for the development of future health education interventions.

Original languageEnglish
Pages (from-to)948-960
Number of pages13
JournalHealth Education Journal
Volume80
Issue number8
Early online date29 Jul 2021
DOIs
Publication statusPublished - Dec 2021

Bibliographical note

Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship and/or publication of this article: The project was supported by The Netherlands Organisation for Health Research and Development (ZonMW) (project number 516022514). ZonMW was not involved in the study design, collection, analysis and interpretation of data; the writing of the article; nor the decision to submit the paper for the publication.

Publisher Copyright: © The Author(s) 2021.

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