TY - JOUR
T1 - Cohort profile
T2 - Demographic and clinical characteristics of the MILESTONE longitudinal cohort of young people approaching the upper age limit of their child mental health care service in Europe
AU - Gerritsen, Suzanne E.
AU - Maras, Athanasios
AU - Van Bodegom, Larissa S.
AU - Overbeek, Mathilde M.
AU - Verhulst, Frank C.
AU - Wolke, Dieter
AU - Appleton, Rebecca
AU - Bertani, Angelo
AU - Cataldo, Maria G.
AU - Conti, Patrizia
AU - Da Fonseca, David
AU - Davidović, Nikolina
AU - Dodig-A †urković, Katarina
AU - Ferrari, Cecilia
AU - Fiori, Federico
AU - Franić, Tomislav
AU - Gatherer, Charlotte
AU - De Girolamo, Giovanni
AU - Heaney, Natalie
AU - Hendrickx, Gaëlle
AU - Kolozsvari, Alfred
AU - Levi, Flavia Micol
AU - Lievesley, Kate
AU - Madan, Jason
AU - Martinelli, Ottaviano
AU - Mastroianni, Mathilde
AU - Maurice, Virginie
AU - McNicholas, Fiona
AU - O'Hara, Lesley
AU - Paul, Moli
AU - Purper-Ouakil, Diane
AU - De Roeck, Veronique
AU - Russet, Frédérick
AU - Saam, Melanie C.
AU - Sagar-Ouriaghli, Ilyas
AU - Santosh, Paramala J.
AU - Sartor, Anne
AU - Schandrin, Aurélie
AU - Schulze, Ulrike M.E.
AU - Signorini, Giulia
AU - Singh, Swaran P.
AU - Singh, Jatinder
AU - Street, Cathy
AU - Tah, Priya
AU - Tanase, Elena
AU - Tremmery, Sabine
AU - Tuffrey, Amanda
AU - Tuomainen, Helena
AU - Van Amelsvoort, Therese A.M.J.
AU - Wilson, Anna
AU - Walker, Leanne
AU - Dieleman, Gwen C.
N1 - Funding Information:
Funding The MILESTONE project was funded by European Commission’s 7th Framework Programme under grant number 602442.
Publisher Copyright:
© 2021 Museum National d'Histoire Naturelle. All rights reserved.
PY - 2021/12/16
Y1 - 2021/12/16
N2 - Purpose The presence of distinct child and adolescent mental health services (CAMHS) and adult mental health services (AMHS) impacts continuity of mental health treatment for young people. However, we do not know the extent of discontinuity of care in Europe nor the effects of discontinuity on the mental health of young people. Current research is limited, as the majority of existing studies are retrospective, based on small samples or used non-standardised information from medical records. The MILESTONE prospective cohort study aims to examine associations between service use, mental health and other outcomes over 24 months, using information from self, parent and clinician reports. Participants Seven hundred sixty-three young people from 39 CAMHS in 8 European countries, their parents and CAMHS clinicians who completed interviews and online questionnaires and were followed up for 2 years after reaching the upper age limit of the CAMHS they receive treatment at. Findings to date This cohort profile describes the baseline characteristics of the MILESTONE cohort. The mental health of young people reaching the upper age limit of their CAMHS varied greatly in type and severity: 32.8% of young people reported clinical levels of self-reported problems and 18.6% were rated to be € markedly ill', € severely ill' or € among the most extremely ill' by their clinician. Fifty-seven per cent of young people reported psychotropic medication use in the previous half year. Future plans Analysis of longitudinal data from the MILESTONE cohort will be used to assess relationships between the demographic and clinical characteristics of young people reaching the upper age limit of their CAMHS and the type of care the young person uses over the next 2 years, such as whether the young person transitions to AMHS. At 2 years follow-up, the mental health outcomes of young people following different care pathways will be compared. Trial registration number NCT03013595.
AB - Purpose The presence of distinct child and adolescent mental health services (CAMHS) and adult mental health services (AMHS) impacts continuity of mental health treatment for young people. However, we do not know the extent of discontinuity of care in Europe nor the effects of discontinuity on the mental health of young people. Current research is limited, as the majority of existing studies are retrospective, based on small samples or used non-standardised information from medical records. The MILESTONE prospective cohort study aims to examine associations between service use, mental health and other outcomes over 24 months, using information from self, parent and clinician reports. Participants Seven hundred sixty-three young people from 39 CAMHS in 8 European countries, their parents and CAMHS clinicians who completed interviews and online questionnaires and were followed up for 2 years after reaching the upper age limit of the CAMHS they receive treatment at. Findings to date This cohort profile describes the baseline characteristics of the MILESTONE cohort. The mental health of young people reaching the upper age limit of their CAMHS varied greatly in type and severity: 32.8% of young people reported clinical levels of self-reported problems and 18.6% were rated to be € markedly ill', € severely ill' or € among the most extremely ill' by their clinician. Fifty-seven per cent of young people reported psychotropic medication use in the previous half year. Future plans Analysis of longitudinal data from the MILESTONE cohort will be used to assess relationships between the demographic and clinical characteristics of young people reaching the upper age limit of their CAMHS and the type of care the young person uses over the next 2 years, such as whether the young person transitions to AMHS. At 2 years follow-up, the mental health outcomes of young people following different care pathways will be compared. Trial registration number NCT03013595.
UR - https://www.scopus.com/pages/publications/85122137578
U2 - 10.1136/bmjopen-2021-053373
DO - 10.1136/bmjopen-2021-053373
M3 - Article
C2 - 34916319
AN - SCOPUS:85122137578
SN - 2044-6055
VL - 11
JO - BMJ Open
JF - BMJ Open
IS - 12
M1 - 053373
ER -
SDG 3 Good Health and Well-being