Competing Agendas in Upstream Engagement Meetings Between Celiac Disease Experts and Patients

Mario Veen*, Hedwig te Molder, Bart Gremmen, Cees van Woerkum

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

4 Citations (Scopus)


This article examines discussions between innovators and patient users about emergent medical technologies in the field of celiac disease. Using discursive psychology and conversation analysis, the authors analyze participants' talk with regard to the social activities performed. They find that the topical agenda, preference structure, and presuppositions incorporated in the innovators' questions restrict patients' scope for saying things in and on their own terms. Not participants' intentions per se but what the questions indirectly communicate profoundly shapes the agenda of these meetings. This may explain why some of the difficulties of innovator-user interaction are persistent and hard to pinpoint.

Original languageEnglish
Pages (from-to)460-486
Number of pages27
JournalScience Communication
Issue number4
Publication statusPublished - 20 Dec 2012
Externally publishedYes

Bibliographical note

Funding Information:
The authors disclosed receipt of the financial support for the research, authorship, and/or publication of this article from the Celiac Disease Consortium, which is part of the Netherlands Genomics Initiative/NOW.


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