Definición y recomendaciones para la planificación de decisiones anticipadas: Un consenso internacional apoyado por la European Association for Palliative Care (EAPC)

Translated title of the contribution: Definition and recommendations for advance care planning: An international consensus supported by the European Association for Palliative Care (EAPC)

Cristina Lasmarías Martínez*, Sara Delgado Girón, Judit A.C. Rietjens, Ida J. Korfage, Xavier Gómez-Batiste

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

11 Citations (Scopus)

Abstract

Advance care planning (ACP) is increasingly implemented in oncology and beyond, but a definition of ACP and recommendations concerning its use are lacking. We used a formal Delphi consensus process to help develop a definition of ACP and provide recommendations for its application. Of the 109 experts (82 from Europe, 16 from North America, and 11 from Australia) who rated the ACP definitions and its 41 recommendations, agreement for each definition or recommendation was between 68-100%. ACP was defined as the ability to enable individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Recommendations included the adaptation of ACP based on the readiness of the individual; targeting ACP content as the individual's health condition worsens; and, using trained non-physician facilitators to support the ACP process. We present a list of outcome measures to enable the pooling and comparison of results of ACP studies. We believe that our recommendations can provide guidance for clinical practice, ACP policy, and research.

Translated title of the contributionDefinition and recommendations for advance care planning: An international consensus supported by the European Association for Palliative Care (EAPC)
Original languageSpanish
Pages (from-to)236-249
Number of pages14
JournalMedicina Paliativa
Volume26
Issue number3
DOIs
Publication statusPublished - 2019

Bibliographical note

Funding Information:
La versión original de este artículo fue publicado en inglés en The Lancet Oncology: Rietjens JAC, Sudore RL, Connolly M et al. “Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care”. The Lancet Oncology 18.9 (2017): e543-e551. La versión original se puede visualizar en: https://www.thelancet.com/journals/la-nonc/article/PIIS1470-2045(17)30582-X/fulltext # Para la traducción en este artículo del concepto Advance Care Planning (ACP) se ha utilizado la denominación Planificación de Decisio-nes Anticipadas (PDA), acuñada en el Modelo Catalán de PDA desde 2015. Se debe tener en cuenta que en España se han utilizado otras denominaciones (PAA, PAAS, PAD), la más reciente es Planificación Compartida de la Atención, consensuada por el Grupo Español de PCA en 2017. El enfoque final, más allá de los matices de las diversas definiciones, es compartido.

Funding Information:
1Department of Public Health, Erasmus MC Rotterdam, Rotterdam, the Netherlands 2Division of Geriatrics, Department of Medicine, University of California, San Francisco, California, US; 3San Francisco Veterans Affairs Medical Center, San Francisco, California, US 4UCD School of Nursing, Midwifery and Health Systems, University College Dublin, Dublin, Ireland 5Julius Center, Department of Medical Humanities, University Medical Center Utrecht, Utrecht, the Netherlands; 6School of Medicine, University of North Carolina, Chapel Hill (NC), US; 7School of Medicine, Yale University, New Haven (CT), US 8Department of Critical Care Medicine, Queen’s University, Kingston, ON, Canada. 9End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium 10Department of Research & Education, CIRO, Centre of expertise for chronic organ failure, Horn, The Netherlands; 11Centre of Expertise for Palliative Care, Maastricht University Medical Centre (MUMC+), Maastricht, The Netherlands; 12Palliative Care Unit, C. Poma Hospital, via Lago Paiolo 10, Mantova, Italy; 13International Observatory on End of Life Care, Division of Health Research, Lancaster University, Lancaster, UK; 14School of Nursing and Midwifery, University of Sheffield, Sheffield, UK 15Institute of Ethics, History and Theory of Medicine, Ludwig-Maximilians University of Munich, Munich, Germany; 16Geriatric Palliative Care, Centre Hospitalier Universitaire Vaudois, University of Lausanne, Lausanne, Switzerland.

Publisher Copyright:
© 2019 Sociedad Española de Cuidados Paliativos.

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