Design and implementation of multicenter pediatric and congenital studies with cardiovascular magnetic resonance: Big data in smaller bodies

Michael P. DiLorenzo*, Simon Lee, Rahul H. Rathod, Francesca Raimondi, Kanwal M. Farooqi, Supriya S. Jain, Margaret M. Samyn, Tiffanie R. Johnson, Laura J. Olivieri, Mark A. Fogel, Wyman W. Lai, Pierangelo Renella, Andrew J. Powell, Sujatha Buddhe, Caitlin Stafford, Jason N. Johnson, Willem A. Helbing, Kuberan Pushparajah, Inga Voges, Vivek MuthuranguKimberley G. Miles, Gerald Greil, Colin J. McMahon, Timothy C. Slesnick, Brian M. Fonseca, Shaine A. Morris, Jonathan H. Soslow, Lars Grosse-Wortmann, Rebecca S. Beroukhim, Heynric B. Grotenhuis

*Corresponding author for this work

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Abstract

Cardiovascular magnetic resonance (CMR) has become the reference standard for quantitative and qualitative assessment of ventricular function, blood flow, and myocardial tissue characterization. There is a preponderance of large CMR studies and registries in adults; However, similarly powered studies are lacking for the pediatric and congenital heart disease (PCHD) population. To date, most CMR studies in children are limited to small single or multicenter studies, thereby limiting the conclusions that can be drawn. Within the PCHD CMR community, a collaborative effort has been successfully employed to recognize knowledge gaps with the aim to embolden the development and initiation of high-quality, large-scale multicenter research. In this publication, we highlight the underlying challenges and provide a practical guide toward the development of larger, multicenter initiatives focusing on PCHD populations, which can serve as a model for future multicenter efforts.

Original languageEnglish
Article number101041
JournalJournal of Cardiovascular Magnetic Resonance
Volume26
Issue number1
DOIs
Publication statusPublished - Jun 2024

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