TY - JOUR
T1 - Development of a patient decision aid for patients with breast cancer who consider immediate breast reconstruction after mastectomy
AU - ter Stege, Jacqueline A.
AU - Raphael, Daniela B.
AU - Oldenburg, Hester S.A.
AU - van Huizum, Martine A.
AU - van Duijnhoven, Frederieke H.
AU - Hahn, Daniela E.E.
AU - The, Regina
AU - Karssen, Klemens
AU - Corten, Eveline M.L.
AU - Krabbe-Timmerman, Irene S.
AU - Huikeshoven, Menno
AU - Ruhé, Quinten
AU - Kimmings, Nikola
AU - Maarse, Wies
AU - Sherman, Kerry A.
AU - Witkamp, Arjen J.
AU - Woerdeman, Leonie A.E.
AU - Bleiker, Eveline M.A.
N1 - Funding information:
Dutch Cancer Society, Grant/Award Number:
A6C/NKI 2014–7031
Publisher Copyright:
© 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd.
PY - 2022/2
Y1 - 2022/2
N2 - Purpose: The aim of this study was to develop a patient decision aid (pDA) that could support patients with breast cancer (BC) in making an informed decision about breast reconstruction (BR) after mastectomy. Methods: The development included four stages: (i) Establishment of a multidisciplinary team; (ii) Needs assessment consisting of semi-structured interviews in patients and a survey among healthcare professionals (HCPs); (iii) Creation of content, design and technical system; and (iv) Acceptability and usability testing using a think-aloud approach in patients and interviews among HCPs and representatives of the Dutch Breast Cancer Patient Organization. Results: From the needs assessment, three themes were identified: Challenging period to make a decision, Diverse motivations for a personal decision and Information needed to make a decision about BR. HCPs valued the development of a pDA, especially to prepare patients for consultation. The pDA that was developed contained three parts: first, a consultation sheet for oncological breast surgeons to introduce the choice; second, an online tool including an overview of reconstructive options, the pros and cons of each option, information on the consequences of each option for daily life, exercises to clarify personal values and patient stories; and third, a summary sheet with patients’ values, preferences and questions to help inform and guide the discussion between the patient and her plastic surgeon. The pDA was perceived to be informative, helpful and easy to use by patients and HCPs. Conclusion: Consistent with information needs, a pDA was developed to support patients with BC who consider immediate BR in making an informed decision together with their plastic surgeon. Patient or Public Contribution: Patients participated in the needs assessment and in acceptability and usability testing.
AB - Purpose: The aim of this study was to develop a patient decision aid (pDA) that could support patients with breast cancer (BC) in making an informed decision about breast reconstruction (BR) after mastectomy. Methods: The development included four stages: (i) Establishment of a multidisciplinary team; (ii) Needs assessment consisting of semi-structured interviews in patients and a survey among healthcare professionals (HCPs); (iii) Creation of content, design and technical system; and (iv) Acceptability and usability testing using a think-aloud approach in patients and interviews among HCPs and representatives of the Dutch Breast Cancer Patient Organization. Results: From the needs assessment, three themes were identified: Challenging period to make a decision, Diverse motivations for a personal decision and Information needed to make a decision about BR. HCPs valued the development of a pDA, especially to prepare patients for consultation. The pDA that was developed contained three parts: first, a consultation sheet for oncological breast surgeons to introduce the choice; second, an online tool including an overview of reconstructive options, the pros and cons of each option, information on the consequences of each option for daily life, exercises to clarify personal values and patient stories; and third, a summary sheet with patients’ values, preferences and questions to help inform and guide the discussion between the patient and her plastic surgeon. The pDA was perceived to be informative, helpful and easy to use by patients and HCPs. Conclusion: Consistent with information needs, a pDA was developed to support patients with BC who consider immediate BR in making an informed decision together with their plastic surgeon. Patient or Public Contribution: Patients participated in the needs assessment and in acceptability and usability testing.
UR - https://www.scopus.com/pages/publications/85117958689
U2 - 10.1111/hex.13368
DO - 10.1111/hex.13368
M3 - Article
C2 - 34708487
AN - SCOPUS:85117958689
SN - 1369-6513
VL - 25
SP - 232
EP - 244
JO - Health Expectations
JF - Health Expectations
IS - 1
ER -
