Experience of palliative care for patients with head and neck cancer through the eyes of next of kin: Impact of an expert center

Marinella Offerman, JFA Pruyn, Maarten Boer, QCP Ledeboer, Jan van Busschbach, R.J. Baatenburg de Jong, LA van der Velden

Research output: Contribution to journalArticleAcademicpeer-review

9 Citations (Scopus)

Abstract

Background. Literature is scarce on the palliative care experiences of patients with head and neck cancer. We report our experience in this patient population after the establishment of our Expert Center. Methods. We administered a questionnaire to 40 surviving relatives of patients with head and neck cancer after the establishment of our Expert Center and compared the results to a similar group of patients with head and neck cancer before the establishment of our Expert Center. Results. Since the establishment of our Expert Center, we found: an improved evaluation of the psychosocial support offered; better contact between head and neck surgeons, the patients, and families; and improvement in the quantity of information in the palliative phase. Some relatives, however, reported that patients received treatment against their wishes and life was not made as comfortable as possible. Conclusion. Important aspects of palliative care, such as psychosocial support and contact between patient and surgeon, have been improved since the establishment of our Expert Center. (C) 2013 Wiley Periodicals, Inc.
Original languageUndefined/Unknown
Pages (from-to)1459-1466
Number of pages8
JournalHead & Neck-Journal for the Sciences and Specialties of the Head and Neck
Volume36
Issue number10
DOIs
Publication statusPublished - 2014

Research programs

  • EMC NIHES-04-58-01
  • EMC OR-01-62-02

Cite this