EXPLORE: A Prospective, Multinational, Natural History Study of Patients with Acute Hepatic Porphyria with Recurrent Attacks

L Gouya; P Ventura; M Balwani; DM Bissell; DC Rees; U Stölzel; JA Phillips; R Kauppinen; Janneke Langendonk; RJ Desnick; JC Deybach; HL Bonkovsky; CA Parker; H Naik; M Badminton; PE Stein; E Minder; J Windyga; R Bruha; MD Cappellini; E Sardh; PG Harper; S Sandberg; AK Aarsand; JB Andersen; F Alegre; A Ivanova; N Talbi; A Chan; W Querbes; JJ Ko; C Penz; S Liu; T Lin; A Simon; KM Anderson

doi:10.1002/hep.30936

EXPLORE: A Prospective, Multinational, Natural History Study of Patients with Acute Hepatic Porphyria with Recurrent Attacks

L Gouya, P Ventura, M Balwani, DM Bissell, DC Rees, U Stölzel, JA Phillips, R Kauppinen, Janneke Langendonk, RJ Desnick, JC Deybach, HL Bonkovsky, CA Parker, H Naik, M Badminton, PE Stein, E Minder, J Windyga, R Bruha, MD CappelliniE Sardh, PG Harper, S Sandberg, AK Aarsand, JB Andersen, F Alegre, A Ivanova, N Talbi, A Chan, W Querbes, JJ Ko, C Penz, S Liu, T Lin, A Simon, KM Anderson

Internal Medicine

Research output: Contribution to journal › Article › Academic › peer-review

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Original language	English
Pages (from-to)	1546-1558
Number of pages	13
Journal	Hepatology
Volume	71
Issue number	5
DOIs	https://doi.org/10.1002/hep.30936
Publication status	Published - 2020

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Gouya, L., Ventura, P., Balwani, M., Bissell, DM., Rees, DC., Stölzel, U., Phillips, JA., Kauppinen, R., Langendonk, J., Desnick, RJ., Deybach, JC., Bonkovsky, HL., Parker, CA., Naik, H., Badminton, M., Stein, PE., Minder, E., Windyga, J., Bruha, R., ... Anderson, KM. (2020). EXPLORE: A Prospective, Multinational, Natural History Study of Patients with Acute Hepatic Porphyria with Recurrent Attacks. Hepatology, 71(5), 1546-1558. https://doi.org/10.1002/hep.30936

Gouya, L ; Ventura, P ; Balwani, M ; Bissell, DM ; Rees, DC ; Stölzel, U ; Phillips, JA ; Kauppinen, R ; Langendonk, Janneke ; Desnick, RJ ; Deybach, JC ; Bonkovsky, HL ; Parker, CA ; Naik, H ; Badminton, M ; Stein, PE ; Minder, E ; Windyga, J ; Bruha, R ; Cappellini, MD ; Sardh, E ; Harper, PG ; Sandberg, S ; Aarsand, AK ; Andersen, JB ; Alegre, F ; Ivanova, A ; Talbi, N ; Chan, A ; Querbes, W ; Ko, JJ ; Penz, C ; Liu, S ; Lin, T ; Simon, A ; Anderson, KM. / EXPLORE: A Prospective, Multinational, Natural History Study of Patients with Acute Hepatic Porphyria with Recurrent Attacks. In: Hepatology. 2020 ; Vol. 71, No. 5. pp. 1546-1558.

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title = "EXPLORE: A Prospective, Multinational, Natural History Study of Patients with Acute Hepatic Porphyria with Recurrent Attacks",

author = "L Gouya and P Ventura and M Balwani and DM Bissell and DC Rees and U St{\"o}lzel and JA Phillips and R Kauppinen and Janneke Langendonk and RJ Desnick and JC Deybach and HL Bonkovsky and CA Parker and H Naik and M Badminton and PE Stein and E Minder and J Windyga and R Bruha and MD Cappellini and E Sardh and PG Harper and S Sandberg and AK Aarsand and JB Andersen and F Alegre and A Ivanova and N Talbi and A Chan and W Querbes and JJ Ko and C Penz and S Liu and T Lin and A Simon and KM Anderson",

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Gouya, L, Ventura, P, Balwani, M, Bissell, DM, Rees, DC, Stölzel, U, Phillips, JA, Kauppinen, R, Langendonk, J, Desnick, RJ, Deybach, JC, Bonkovsky, HL, Parker, CA, Naik, H, Badminton, M, Stein, PE, Minder, E, Windyga, J, Bruha, R, Cappellini, MD, Sardh, E, Harper, PG, Sandberg, S, Aarsand, AK, Andersen, JB, Alegre, F, Ivanova, A, Talbi, N, Chan, A, Querbes, W, Ko, JJ, Penz, C, Liu, S, Lin, T, Simon, A & Anderson, KM 2020, 'EXPLORE: A Prospective, Multinational, Natural History Study of Patients with Acute Hepatic Porphyria with Recurrent Attacks', Hepatology, vol. 71, no. 5, pp. 1546-1558. https://doi.org/10.1002/hep.30936

EXPLORE: A Prospective, Multinational, Natural History Study of Patients with Acute Hepatic Porphyria with Recurrent Attacks. / Gouya, L; Ventura, P; Balwani, M; Bissell, DM; Rees, DC; Stölzel, U; Phillips, JA; Kauppinen, R; Langendonk, Janneke; Desnick, RJ; Deybach, JC; Bonkovsky, HL; Parker, CA; Naik, H; Badminton, M; Stein, PE; Minder, E; Windyga, J; Bruha, R; Cappellini, MD; Sardh, E; Harper, PG; Sandberg, S; Aarsand, AK; Andersen, JB; Alegre, F; Ivanova, A; Talbi, N; Chan, A; Querbes, W; Ko, JJ; Penz, C; Liu, S; Lin, T; Simon, A; Anderson, KM.

In: Hepatology, Vol. 71, No. 5, 2020, p. 1546-1558.

Research output: Contribution to journal › Article › Academic › peer-review

TY - JOUR

T1 - EXPLORE: A Prospective, Multinational, Natural History Study of Patients with Acute Hepatic Porphyria with Recurrent Attacks

AU - Gouya, L

AU - Ventura, P

AU - Balwani, M

AU - Bissell, DM

AU - Rees, DC

AU - Stölzel, U

AU - Phillips, JA

AU - Kauppinen, R

AU - Langendonk, Janneke

AU - Desnick, RJ

AU - Deybach, JC

AU - Bonkovsky, HL

AU - Parker, CA

AU - Naik, H

AU - Badminton, M

AU - Stein, PE

AU - Minder, E

AU - Windyga, J

AU - Bruha, R

AU - Cappellini, MD

AU - Sardh, E

AU - Harper, PG

AU - Sandberg, S

AU - Aarsand, AK

AU - Andersen, JB

AU - Alegre, F

AU - Ivanova, A

AU - Talbi, N

AU - Chan, A

AU - Querbes, W

AU - Ko, JJ

AU - Penz, C

AU - Liu, S

AU - Lin, T

AU - Simon, A

AU - Anderson, KM

PY - 2020

Y1 - 2020

U2 - 10.1002/hep.30936

DO - 10.1002/hep.30936

M3 - Article

VL - 71

SP - 1546

EP - 1558

JO - Hepatology

JF - Hepatology

SN - 0270-9139

IS - 5

ER -