TY - JOUR
T1 - 'FACE ME'-The Impact and Value of an Arts-Based Project About the Patient-Parent-Clinician Relationship in European Reference Network CRANIO
AU - Faasse, Mariët
AU - Groot-Sluijsmans, Barbara C
AU - ERN CRANIO FACE ME Project Group
AU - Boer, Sandra
AU - Hassels Mönning, Cathy
AU - Jongenelis, Hewald WJM
AU - Kljajic, Marizela
AU - Mathijssen, Irene
AU - van Opstal, Mariska
AU - van den Ouweland, Indy
AU - Spoor, Jochem
AU - Thomale, Ulrich-Wilhelm
AU - Zijlmans, Sylvie
AU - Coopmans, Aafke G
AU - van de Bovenkamp, Hester M
N1 - Publisher Copyright:
Copyright © 2025 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of Mutaz B. Habal, MD.
PY - 2025/3/31
Y1 - 2025/3/31
N2 - BACKGROUND: A good patient-clinician relationship is an important aspect of quality of care according to patients living with a rare congenital craniofacial condition and their parents. Despite efforts, the challenging question remains how to improve this relationship.OBJECTIVE: The authors describe the value and impact of using arts-based methods as a catalyst for bringing the 2 'worlds' of patients and their parents and that of clinicians together.METHODS: FACE ME, developed by 2 visual artists, consisted of reorganizing the house of a surgeon with a group of patients (n=3), surgeons (n=3), and a parent (n=1) resulting in 2 artworks. The following data were analyzed using reflexive thematic analysis: the film recording the process, photos of the artworks (i.e., end-results of 2 reorganizations), conversations and reflections of the project group involved, and survey results of respondents who watched the film and photos.RESULTS: Four intertwined themes describe the impact and value of FACE ME: (1) importance of exchanging trust, (2) seeing each other as a person, (3) imagine standing in each other's shoes, and 4) working as a team. These themes represent both perspectives and their similarities in expectations of a good relationship, and findings were supported by the views of the project group and the audience watching the film.CONCLUSION: FACE ME crossed the boundaries of clinicians, patients, and their parents, and created a better mutual understanding. This arts-based project started a different conversation, and reflection, changed mindsets, and provoked actions towards a better relationship.
AB - BACKGROUND: A good patient-clinician relationship is an important aspect of quality of care according to patients living with a rare congenital craniofacial condition and their parents. Despite efforts, the challenging question remains how to improve this relationship.OBJECTIVE: The authors describe the value and impact of using arts-based methods as a catalyst for bringing the 2 'worlds' of patients and their parents and that of clinicians together.METHODS: FACE ME, developed by 2 visual artists, consisted of reorganizing the house of a surgeon with a group of patients (n=3), surgeons (n=3), and a parent (n=1) resulting in 2 artworks. The following data were analyzed using reflexive thematic analysis: the film recording the process, photos of the artworks (i.e., end-results of 2 reorganizations), conversations and reflections of the project group involved, and survey results of respondents who watched the film and photos.RESULTS: Four intertwined themes describe the impact and value of FACE ME: (1) importance of exchanging trust, (2) seeing each other as a person, (3) imagine standing in each other's shoes, and 4) working as a team. These themes represent both perspectives and their similarities in expectations of a good relationship, and findings were supported by the views of the project group and the audience watching the film.CONCLUSION: FACE ME crossed the boundaries of clinicians, patients, and their parents, and created a better mutual understanding. This arts-based project started a different conversation, and reflection, changed mindsets, and provoked actions towards a better relationship.
UR - https://www.scopus.com/pages/publications/105002020452
U2 - 10.1097/scs.0000000000011295
DO - 10.1097/scs.0000000000011295
M3 - Article
C2 - 40167308
SN - 1049-2275
JO - The Journal of craniofacial surgery
JF - The Journal of craniofacial surgery
M1 - 10.1097/SCS.0000000000011295
ER -