TY - JOUR
T1 - Family centeredness of care
T2 - a cross-sectional study in intensive care units part of the European society of intensive care medicine
AU - Azoulay, Élie
AU - Kentish-Barnes, Nancy
AU - Boulanger, Carole
AU - Mistraletti, Giovanni
AU - van Mol, Margo
AU - Heras-La Calle, Gabriel
AU - Estenssoro, Elisa
AU - van Heerden, Peter Vernon
AU - Delgado, Maria Cruz Martin
AU - Perner, Anders
AU - Arabi, Yaseen M.
AU - Myatra, Sheila Nainan
AU - Laake, Jon Henrik
AU - De Waele, Jan J.
AU - Darmon, Michael
AU - Cecconi, Maurizio
N1 - Publisher Copyright: © The Author(s) 2024.
PY - 2024/5/21
Y1 - 2024/5/21
N2 - Purpose: To identify key components and variations in family-centered care practices. Methods: A cross-sectional study, conducted across ESICM members. Participating ICUs completed a questionnaire covering general ICU characteristics, visitation policies, team-family interactions, and end-of-life decision-making. The primary outcome, self-rated family-centeredness, was assessed using a visual analog scale. Additionally, respondents completed the Maslach Burnout Inventory and the Ethical Decision Making Climate Questionnaire to capture burnout dimensions and assess the ethical decision-making climate. Results: The response rate was 53% (respondents from 359/683 invited ICUs who actually open the email); participating healthcare professionals (HCPs) were from Europe (62%), Asia (9%), South America (6%), North America (5%), Middle East (4%), and Australia/New Zealand (4%). The importance of family-centeredness was ranked high, median 7 (IQR 6–8) of 10 on VAS. Significant differences were observed across quartiles of family centeredness, including in visitation policies availability of a waiting rooms, family rooms, family information leaflet, visiting hours, night visits, sleep in the ICU, and in team-family interactions, including daily information, routine day-3 conference, and willingness to empower nurses and relatives. Higher family centeredness correlated with family involvement in rounds, participation in patient care and end-of-life practices. Burnout symptoms (41% of respondents) were negatively associated with family-centeredness. Ethical climate and willingness to empower nurses were independent predictors of family centeredness. Conclusions: This study emphasizes the need to prioritize healthcare providers’ mental health for enhanced family-centered care. Further research is warranted to assess the impact of improving the ethical climate on family-centeredness.
AB - Purpose: To identify key components and variations in family-centered care practices. Methods: A cross-sectional study, conducted across ESICM members. Participating ICUs completed a questionnaire covering general ICU characteristics, visitation policies, team-family interactions, and end-of-life decision-making. The primary outcome, self-rated family-centeredness, was assessed using a visual analog scale. Additionally, respondents completed the Maslach Burnout Inventory and the Ethical Decision Making Climate Questionnaire to capture burnout dimensions and assess the ethical decision-making climate. Results: The response rate was 53% (respondents from 359/683 invited ICUs who actually open the email); participating healthcare professionals (HCPs) were from Europe (62%), Asia (9%), South America (6%), North America (5%), Middle East (4%), and Australia/New Zealand (4%). The importance of family-centeredness was ranked high, median 7 (IQR 6–8) of 10 on VAS. Significant differences were observed across quartiles of family centeredness, including in visitation policies availability of a waiting rooms, family rooms, family information leaflet, visiting hours, night visits, sleep in the ICU, and in team-family interactions, including daily information, routine day-3 conference, and willingness to empower nurses and relatives. Higher family centeredness correlated with family involvement in rounds, participation in patient care and end-of-life practices. Burnout symptoms (41% of respondents) were negatively associated with family-centeredness. Ethical climate and willingness to empower nurses were independent predictors of family centeredness. Conclusions: This study emphasizes the need to prioritize healthcare providers’ mental health for enhanced family-centered care. Further research is warranted to assess the impact of improving the ethical climate on family-centeredness.
UR - http://www.scopus.com/inward/record.url?scp=85193633758&partnerID=8YFLogxK
U2 - 10.1186/s13613-024-01307-0
DO - 10.1186/s13613-024-01307-0
M3 - Article
C2 - 38771395
AN - SCOPUS:85193633758
SN - 2110-5820
VL - 14
JO - Annals of Intensive Care
JF - Annals of Intensive Care
IS - 1
M1 - 77
ER -