Framework for Multistakeholder Patient Registries in the Field of Rare Diseases: Focus on Neurogenetic Diseases

Daphne H. Schoenmakers, Sibren Van Den Berg, Lonneke Timmers, Laura A. Adang, Tobias Bäumer, Annet Bosch, Marc Van De Casteele, Mareen R. Datema, Hanka Dekker, Conan Donnelly, Mariëtte H.E. Driessens, Holm Graessner, Valerie Greger, Tala Haddad, Günter U. Höglinger, Hannerieke Van Den Hout, Carla Jonker, Mirjam Langeveld, Laurie J. Lambert, Eileen NeacyMarc Nieuwland, Thomas Klockgether, Marjo S. Van Der Knaap, Andri Papadopoulou, Kelly Plueschke, Sanne Van Rijn, Noa Rosenberg, Elise F. Saunier-Vivar, Bruna Dos Santos Vieira, Carla E.M. Hollak, Wim G. Goettsch, Nicole I. Wolf*

*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

1 Citation (Scopus)

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Medicine and Dentistry