How do parents experience patching or dichoptic action video gaming as amblyopia treatment? A qualitative study exploring treatment preferences and information needs to facilitate decision-making

Emily T.C. Tan, Aveen Kadhum, Marieke A.J. Telleman, Annemieke Treur, Janna Bruijning, Sjoukje E. Loudon*

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

34 Downloads (Pure)

Abstract

Purpose: To explore parents' experiences, preferences and information needs when either patching treatment or dichoptic action video gaming is used as an amblyopia treatment for their child. Methods: A qualitative study was carried out on parents whose newly diagnosed amblyopic children participated in a randomised controlled trial (RCT) comparing the effects of dichoptic action video gaming versus patching. A purposive heterogenic sample was selected for an additional interview after the study period. Semi-structured interviews were conducted with one or both parents and transcribed verbatim, and a thematic analysis was performed. Results: Ten families agreed to participate: seven in the patching group and three in the gaming group. Two themes emerged from the data exploring experiences with treatment: (1) factors influencing compliance and (2) burden with treatment. Parents reported creating a routine which improved compliance with patching, as opposed to gaming where parents felt less need to conduct the treatment themselves as it was performed in the outpatient clinic. In both groups, parents experienced an information hiatus regarding the role of refractive error. In deciding the type of treatment to be used, parents preferred to deliberate the choice with the healthcare professional and discuss considerations resulting in shared decisions. The emerging themes were (1) effect and efficiency of treatment, (2) organisational aspects of treatments and (3) their child's traits. Conclusion: This study provides insight into the experiences of parents whose children underwent different types of amblyopia therapy. Both treatments have their own advantages and disadvantages. For parents, the effectiveness and efficiency of treatment were the most important aspects when deciding the method of management. Parents wish to come to a well-informed, shared decision regarding the type of amblyopia treatment.

Original languageEnglish
Pages (from-to)649-659
Number of pages11
JournalOphthalmic and Physiological Optics
Volume43
Issue number4
DOIs
Publication statusPublished - Jul 2023

Bibliographical note

Funding Information:
This work was supported by Uitzicht (project no. UZ 2016‐25), Stichting Lijf en Leven (project no. 36) and ODAS Stichting (project no. 2016‐04).

Publisher Copyright:
© 2023 The Authors. Ophthalmic and Physiological Optics published by John Wiley & Sons Ltd on behalf of College of Optometrists.

Fingerprint

Dive into the research topics of 'How do parents experience patching or dichoptic action video gaming as amblyopia treatment? A qualitative study exploring treatment preferences and information needs to facilitate decision-making'. Together they form a unique fingerprint.

Cite this