Research output per year
Research output per year
Linda Dekker*, Linde Hooijman, Anneke Louwerse, Kirsten Visser, Dennis Bastiaansen, Leontine Ten Hoopen, Pieter De Nijs, Gwen Dieleman, Wietske Ester, Susan Van Rijen, Femke Truijens, Ruth Van Der Hallen
Research output: Contribution to journal › Article › Academic › peer-review
BACKGROUND: The COVID-19 pandemic is a challenge for everyone, particularly for children and adolescents with autism spectrum disorder (ASD). ASD is a developmental disorder characterised by limitations in social communication, repetitive behavioural patterns, and limited interests, and activities. It is expected that many families with children with ASD will experience more problems due to the COVID-19 pandemic and the related public health restrictions. At the same time, some may experience improved functioning, due to fewer expectations and social demands.
METHODS/DESIGN: In a mixed-method study to identify the impact of the COVID-19 pandemic, parents of children with ASD (ages 4-21) who were in care pre-COVID-19 at one of three large mental healthcare institutions in the region of Rotterdam participated (68 for T0, 57 for T1). The aims are (1) to investigate the impact of the COVID-19 pandemic on overall functioning and autistic symptoms of the child/adolescent with ASD, as well as parental and family functioning (QUANT-QUAL), in both the short term and longer term, and (2) to investigate risk and protective factors (in light of resilience) (QUANT-qual) and (3) to investigate care and informational needs (QUAL-quant). Pre-COVID-19 baseline data will be retrieved from clinical records. Participants will fill out two surveys (one during a COVID-19 peak-January-May 2021-and one thereafter). Survey participants were invited to participate in interviews (n=27). Surveys include measures thar were included pre-COVID-19 (ie, overall functioning and autism symptoms) as well as specific measures to identify family functioning and COVID-19 impact. The semistructured interviews focus on child, parent and family functioning and care-and informational needs.
ETHICS AND DISSEMINATION: The Medical Ethics Committee of the Erasmus MC has approved the study. Findings will be available to families of children with ASD, their care providers, the funders, autism societies, the government and other researchers.
Original language | English |
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Article number | e049336 |
Journal | BMJ Open |
Volume | 12 |
Issue number | 1 |
DOIs | |
Publication status | Published - 25 Jan 2022 |
Research output: Contribution to conference › Poster › Academic
Dekker, L. (Speaker), Hooijman, L. (Speaker), Van der Hallen, R. (Speaker), Louwerse, A. (Speaker), Visser, K. (Speaker), Bastiaansen, D. (Speaker), ten Hoopen, L. (Speaker), de Nijs, P. (Speaker), Dieleman, G. (Speaker), Ester, W. (Speaker), van Rijen, S. (Speaker) & Truijens, F. (Speaker)
Activity: Talk or presentation › Oral presentation › Academic
Van der Hallen, R. (Speaker), Hooijman, L. (Speaker), Louwerse, A. (Speaker), Visser, K. (Speaker), Bastiaansen, D. (Speaker), ten Hoopen, L. (Speaker), de Nijs, P. (Speaker), Dieleman, G. (Speaker), Ester, W. (Speaker), van Rijen, S. (Speaker), Truijens, F. (Speaker) & Dekker, L. (Speaker)
Activity: Talk or presentation › Oral presentation › Academic
Dekker, L., Truijens, F., van Rijen, S. & Van der Hallen, R.
25/08/22
1 Media contribution
Press/Media: Public engagement activities › Professional