Impacts of an advance care planning intervention on close relationships

Francesco Bulli; Alessandro Toccafondi; Marijke C. Kars; Glenys Caswell; Hana Kodba-Ceh; Urska Lunder; Kristian Pollock; Jane Seymour; Johannes J.M. Van Delden; Marieke Zwakman; Ida J. Korfage; Agnes Van Der Heide; Guido Miccinesi

doi:10.1017/S1478951523000482

Impacts of an advance care planning intervention on close relationships

Francesco Bulli, Alessandro Toccafondi, Marijke C. Kars, Glenys Caswell, Hana Kodba-Ceh, Urska Lunder, Kristian Pollock^*, Jane Seymour, Johannes J.M. Van Delden, Marieke Zwakman, Ida J. Korfage, Agnes Van Der Heide, Guido Miccinesi

^*Corresponding author for this work

Public Health

Research output: Contribution to journal › Article › Academic › peer-review

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Abstract

Objectives To examine how an advance care planning (ACP) intervention based on structured conversations impacts the relationship between patients with advanced cancer and their nominated Personal Representatives (PRs). Methods Within the ACTION research project, a qualitative study was carried out in 4 countries (Italy, United Kingdom, the Netherlands, and Slovenia) to explore the lived experience of engagement with the ACTION Respecting Choices® ACP intervention from the perspectives of patients and their PRs. A phenomenological approach was undertaken. Results Our findings show that taking part in the ACTION ACP intervention provides a communicative space for patients and their PRs to share their understanding and concerns about the illness and its consequences. In some cases, this may strengthen relationships by realigning patients' and PRs' understanding and expectations and affirming their mutual commitment and support. Significance of results The most significant consequence of the ACP process in our study was the deepening of mutual understanding and relationship between some patients and PRs and the enhancement of their sense of mutuality and connectedness in the present. However, being a relational intervention, ACP may raise some challenging and distressing issues. The interpersonal dynamics of the discussion require skilled and careful professional facilitation.

Original language	English
Pages (from-to)	1-6
Number of pages	6
Journal	Palliative and Supportive Care
DOIs	https://doi.org/10.1017/S1478951523000482
Publication status	Published - 2023

Bibliographical note

Funding:
The authors declare grant funding for the submitted work from
the European Union’s Seventh Framework Programme FP7/2007-2013 under
grant agreement no 602541. The funders had no role in the study design, data
collection and analysis, decision to publish, or preparation of the manuscript.

Publisher Copyright:
© The Author(s), 2023. Published by Cambridge University Press.

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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Impacts of an advance care planning intervention on close relationshipsFinal published version, 269 KBLicence: CC BY

Cite this

@article{663394ede226480ca975436a23135488,

title = "Impacts of an advance care planning intervention on close relationships",

abstract = "Objectives To examine how an advance care planning (ACP) intervention based on structured conversations impacts the relationship between patients with advanced cancer and their nominated Personal Representatives (PRs). Methods Within the ACTION research project, a qualitative study was carried out in 4 countries (Italy, United Kingdom, the Netherlands, and Slovenia) to explore the lived experience of engagement with the ACTION Respecting Choices{\textregistered} ACP intervention from the perspectives of patients and their PRs. A phenomenological approach was undertaken. Results Our findings show that taking part in the ACTION ACP intervention provides a communicative space for patients and their PRs to share their understanding and concerns about the illness and its consequences. In some cases, this may strengthen relationships by realigning patients' and PRs' understanding and expectations and affirming their mutual commitment and support. Significance of results The most significant consequence of the ACP process in our study was the deepening of mutual understanding and relationship between some patients and PRs and the enhancement of their sense of mutuality and connectedness in the present. However, being a relational intervention, ACP may raise some challenging and distressing issues. The interpersonal dynamics of the discussion require skilled and careful professional facilitation.",

author = "Francesco Bulli and Alessandro Toccafondi and Kars, {Marijke C.} and Glenys Caswell and Hana Kodba-Ceh and Urska Lunder and Kristian Pollock and Jane Seymour and {Van Delden}, {Johannes J.M.} and Marieke Zwakman and Korfage, {Ida J.} and {Van Der Heide}, Agnes and Guido Miccinesi",

note = "Funding: The authors declare grant funding for the submitted work from the European Union{\textquoteright}s Seventh Framework Programme FP7/2007-2013 under grant agreement no 602541. The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Publisher Copyright: {\textcopyright} The Author(s), 2023. Published by Cambridge University Press.",

year = "2023",

doi = "10.1017/S1478951523000482",

language = "English",

pages = "1--6",

journal = "Palliative and Supportive Care",

issn = "1478-9515",

publisher = "Cambridge University Press",

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T1 - Impacts of an advance care planning intervention on close relationships

AU - Bulli, Francesco

AU - Toccafondi, Alessandro

AU - Kars, Marijke C.

AU - Caswell, Glenys

AU - Kodba-Ceh, Hana

AU - Lunder, Urska

AU - Pollock, Kristian

AU - Seymour, Jane

AU - Van Delden, Johannes J.M.

AU - Zwakman, Marieke

AU - Korfage, Ida J.

AU - Van Der Heide, Agnes

AU - Miccinesi, Guido

N1 - Funding: The authors declare grant funding for the submitted work from the European Union’s Seventh Framework Programme FP7/2007-2013 under grant agreement no 602541. The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Publisher Copyright: © The Author(s), 2023. Published by Cambridge University Press.

PY - 2023

Y1 - 2023

N2 - Objectives To examine how an advance care planning (ACP) intervention based on structured conversations impacts the relationship between patients with advanced cancer and their nominated Personal Representatives (PRs). Methods Within the ACTION research project, a qualitative study was carried out in 4 countries (Italy, United Kingdom, the Netherlands, and Slovenia) to explore the lived experience of engagement with the ACTION Respecting Choices® ACP intervention from the perspectives of patients and their PRs. A phenomenological approach was undertaken. Results Our findings show that taking part in the ACTION ACP intervention provides a communicative space for patients and their PRs to share their understanding and concerns about the illness and its consequences. In some cases, this may strengthen relationships by realigning patients' and PRs' understanding and expectations and affirming their mutual commitment and support. Significance of results The most significant consequence of the ACP process in our study was the deepening of mutual understanding and relationship between some patients and PRs and the enhancement of their sense of mutuality and connectedness in the present. However, being a relational intervention, ACP may raise some challenging and distressing issues. The interpersonal dynamics of the discussion require skilled and careful professional facilitation.

AB - Objectives To examine how an advance care planning (ACP) intervention based on structured conversations impacts the relationship between patients with advanced cancer and their nominated Personal Representatives (PRs). Methods Within the ACTION research project, a qualitative study was carried out in 4 countries (Italy, United Kingdom, the Netherlands, and Slovenia) to explore the lived experience of engagement with the ACTION Respecting Choices® ACP intervention from the perspectives of patients and their PRs. A phenomenological approach was undertaken. Results Our findings show that taking part in the ACTION ACP intervention provides a communicative space for patients and their PRs to share their understanding and concerns about the illness and its consequences. In some cases, this may strengthen relationships by realigning patients' and PRs' understanding and expectations and affirming their mutual commitment and support. Significance of results The most significant consequence of the ACP process in our study was the deepening of mutual understanding and relationship between some patients and PRs and the enhancement of their sense of mutuality and connectedness in the present. However, being a relational intervention, ACP may raise some challenging and distressing issues. The interpersonal dynamics of the discussion require skilled and careful professional facilitation.

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JO - Palliative and Supportive Care

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Impacts of an advance care planning intervention on close relationships

Abstract

Bibliographical note

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