TY - JOUR
T1 - Long-term multidisciplinary follow-up programs in pediatric cardiac arrest survivors
AU - Hunfeld, M.
AU - Dulfer, K.
AU - Del Castillo, J.
AU - Vázquez, M.
AU - Buysse, C. M.P.
N1 - Publisher Copyright: © 2024 The Author(s)
PY - 2024/3
Y1 - 2024/3
N2 - Long-term outcome studies after pediatric cardiac arrest (CA) are few. They require a CA registry and dedicated outcome teams. Learning about the long-term outcomes is very important for developing prognostication guidelines, improving post-cardiac care, counseling caregivers about the future of their child, and creating opportunities for therapeutic intervention studies to improve outcomes. Few PICUs worldwide provide a multidisciplinary follow-up program as routine practice at an outpatient clinic with standardized measurements, using validated instruments including neuropsychological assessments by psychologists. The primary goal of such a follow-up program should be to provide excellent care to children and their caregivers, thereby resulting in a high attendance. Pediatric psychologists, neurologists and pediatricians/pediatric intensivists should ideally be involved to screen for delayed development and psychosocial problems and offer appropriate care at the same time. Preferably, outcomes should consist of evaluation of morbidity (physical and neuropsychological), functional health and Health Related Quality Of Life (QoL) of the patient and their caregivers.
AB - Long-term outcome studies after pediatric cardiac arrest (CA) are few. They require a CA registry and dedicated outcome teams. Learning about the long-term outcomes is very important for developing prognostication guidelines, improving post-cardiac care, counseling caregivers about the future of their child, and creating opportunities for therapeutic intervention studies to improve outcomes. Few PICUs worldwide provide a multidisciplinary follow-up program as routine practice at an outpatient clinic with standardized measurements, using validated instruments including neuropsychological assessments by psychologists. The primary goal of such a follow-up program should be to provide excellent care to children and their caregivers, thereby resulting in a high attendance. Pediatric psychologists, neurologists and pediatricians/pediatric intensivists should ideally be involved to screen for delayed development and psychosocial problems and offer appropriate care at the same time. Preferably, outcomes should consist of evaluation of morbidity (physical and neuropsychological), functional health and Health Related Quality Of Life (QoL) of the patient and their caregivers.
UR - http://www.scopus.com/inward/record.url?scp=85184040446&partnerID=8YFLogxK
U2 - 10.1016/j.resplu.2024.100563
DO - 10.1016/j.resplu.2024.100563
M3 - Article
C2 - 38328751
AN - SCOPUS:85184040446
SN - 2666-5204
VL - 17
JO - Resuscitation Plus
JF - Resuscitation Plus
M1 - 100563
ER -