Measuring advance care planning behavior in Dutch adults: translation, cultural adaptation and validation of the Advance Care Planning Engagement Survey

Doris van der Smissen; Agnes van der Heide; Rebecca L. Sudore; Judith A.C. Rietjens; Ida J. Korfage

doi:10.1186/s12874-021-01389-5

Measuring advance care planning behavior in Dutch adults: translation, cultural adaptation and validation of the Advance Care Planning Engagement Survey

Doris van der Smissen^*, Agnes van der Heide, Rebecca L. Sudore, Judith A.C. Rietjens, Ida J. Korfage

^*Corresponding author for this work

Public Health

Research output: Contribution to journal › Article › Academic › peer-review

6 Citations (Scopus)

60 Downloads (Pure)

Abstract

Background: Advance care planning (ACP) enables people to define, discuss, and record preferences for treatment and care. Measures of ACP behavior are lacking in the Netherlands. We aimed to translate, culturally adapt and validate the 34-item ACP Engagement Survey into Dutch. Methods: Following validation guidelines, we tested content validity, internal consistency, reproducibility, construct validity, interpretability and criterion validity among persons with and without chronic disease. Results: Forward-backward translation indicated the need of only minor adaptations. Two hundred thirty-two persons completed baseline and retest surveys; 121 were aged ≥60 years. Persons with chronic disease (n = 151) considered the survey more valuable than those without (66 vs. 59, p < 0.001, scale of 20–100), indicating good content validity. Internal consistency (Cronbach’s alpha: 0.97) and reproducibility (intraclass correlation: 0.88) were good. Total ACP Engagement was higher among persons with chronic disease than those without (2.9 vs. 2.4, p < 0.01, scale of 1 to 5), indicating good psychometric support for construct validity and interpretability. Positive correlations of the ACP Engagement Survey and the General Self-Efficacy survey indicated good criterion validity (p < 0.05). Conclusions: This study provided good psychometric support for the validity and reliability of the Dutch 34-item ACP Engagement Survey. This instrument can be used to assess involvement in ACP in adults with and without chronic disease.

Original language	English
Article number	194
Number of pages	8
Journal	BMC Medical Research Methodology
Volume	21
Issue number	1
DOIs	https://doi.org/10.1186/s12874-021-01389-5
Publication status	Published - 25 Sept 2021

Bibliographical note

Funding
This work was supported by the Netherlands Organisation for Health Research and Development [grant number: 80–84400–98-356]. Dr. Sudore is funded in part by the National Institute on Aging, National Institutes of Health (grant number: K24AG054415). The funding sources had no involvement in the study design, collection, analysis and interpretation of data, in the writing of the report and in the decision to submit the article for publication.

Publisher Copyright:
© 2021, The Author(s).

Access to Document

10.1186/s12874-021-01389-5

s12874-021-01389-5Licence: CC BY

Cite this

@article{0a07a5ff9c844ee2bb16061961ed326b,

title = "Measuring advance care planning behavior in Dutch adults: translation, cultural adaptation and validation of the Advance Care Planning Engagement Survey",

abstract = "Background: Advance care planning (ACP) enables people to define, discuss, and record preferences for treatment and care. Measures of ACP behavior are lacking in the Netherlands. We aimed to translate, culturally adapt and validate the 34-item ACP Engagement Survey into Dutch. Methods: Following validation guidelines, we tested content validity, internal consistency, reproducibility, construct validity, interpretability and criterion validity among persons with and without chronic disease. Results: Forward-backward translation indicated the need of only minor adaptations. Two hundred thirty-two persons completed baseline and retest surveys; 121 were aged ≥60 years. Persons with chronic disease (n = 151) considered the survey more valuable than those without (66 vs. 59, p < 0.001, scale of 20–100), indicating good content validity. Internal consistency (Cronbach{\textquoteright}s alpha: 0.97) and reproducibility (intraclass correlation: 0.88) were good. Total ACP Engagement was higher among persons with chronic disease than those without (2.9 vs. 2.4, p < 0.01, scale of 1 to 5), indicating good psychometric support for construct validity and interpretability. Positive correlations of the ACP Engagement Survey and the General Self-Efficacy survey indicated good criterion validity (p < 0.05). Conclusions: This study provided good psychometric support for the validity and reliability of the Dutch 34-item ACP Engagement Survey. This instrument can be used to assess involvement in ACP in adults with and without chronic disease.",

author = "{van der Smissen}, Doris and {van der Heide}, Agnes and Sudore, {Rebecca L.} and Rietjens, {Judith A.C.} and Korfage, {Ida J.}",

note = "Funding This work was supported by the Netherlands Organisation for Health Research and Development [grant number: 80–84400–98-356]. Dr. Sudore is funded in part by the National Institute on Aging, National Institutes of Health (grant number: K24AG054415). The funding sources had no involvement in the study design, collection, analysis and interpretation of data, in the writing of the report and in the decision to submit the article for publication. Publisher Copyright: {\textcopyright} 2021, The Author(s).",

year = "2021",

month = sep,

day = "25",

doi = "10.1186/s12874-021-01389-5",

language = "English",

volume = "21",

journal = "BMC Medical Research Methodology",

issn = "1471-2288",

publisher = "BioMed Central Ltd.",

number = "1",

}

Measuring advance care planning behavior in Dutch adults: translation, cultural adaptation and validation of the Advance Care Planning Engagement Survey. / van der Smissen, Doris; van der Heide, Agnes; Sudore, Rebecca L. et al.
In: BMC Medical Research Methodology, Vol. 21, No. 1, 194, 25.09.2021.

Research output: Contribution to journal › Article › Academic › peer-review

TY - JOUR

T1 - Measuring advance care planning behavior in Dutch adults

T2 - translation, cultural adaptation and validation of the Advance Care Planning Engagement Survey

AU - van der Smissen, Doris

AU - van der Heide, Agnes

AU - Sudore, Rebecca L.

AU - Rietjens, Judith A.C.

AU - Korfage, Ida J.

N1 - Funding This work was supported by the Netherlands Organisation for Health Research and Development [grant number: 80–84400–98-356]. Dr. Sudore is funded in part by the National Institute on Aging, National Institutes of Health (grant number: K24AG054415). The funding sources had no involvement in the study design, collection, analysis and interpretation of data, in the writing of the report and in the decision to submit the article for publication. Publisher Copyright: © 2021, The Author(s).

PY - 2021/9/25

Y1 - 2021/9/25

N2 - Background: Advance care planning (ACP) enables people to define, discuss, and record preferences for treatment and care. Measures of ACP behavior are lacking in the Netherlands. We aimed to translate, culturally adapt and validate the 34-item ACP Engagement Survey into Dutch. Methods: Following validation guidelines, we tested content validity, internal consistency, reproducibility, construct validity, interpretability and criterion validity among persons with and without chronic disease. Results: Forward-backward translation indicated the need of only minor adaptations. Two hundred thirty-two persons completed baseline and retest surveys; 121 were aged ≥60 years. Persons with chronic disease (n = 151) considered the survey more valuable than those without (66 vs. 59, p < 0.001, scale of 20–100), indicating good content validity. Internal consistency (Cronbach’s alpha: 0.97) and reproducibility (intraclass correlation: 0.88) were good. Total ACP Engagement was higher among persons with chronic disease than those without (2.9 vs. 2.4, p < 0.01, scale of 1 to 5), indicating good psychometric support for construct validity and interpretability. Positive correlations of the ACP Engagement Survey and the General Self-Efficacy survey indicated good criterion validity (p < 0.05). Conclusions: This study provided good psychometric support for the validity and reliability of the Dutch 34-item ACP Engagement Survey. This instrument can be used to assess involvement in ACP in adults with and without chronic disease.

AB - Background: Advance care planning (ACP) enables people to define, discuss, and record preferences for treatment and care. Measures of ACP behavior are lacking in the Netherlands. We aimed to translate, culturally adapt and validate the 34-item ACP Engagement Survey into Dutch. Methods: Following validation guidelines, we tested content validity, internal consistency, reproducibility, construct validity, interpretability and criterion validity among persons with and without chronic disease. Results: Forward-backward translation indicated the need of only minor adaptations. Two hundred thirty-two persons completed baseline and retest surveys; 121 were aged ≥60 years. Persons with chronic disease (n = 151) considered the survey more valuable than those without (66 vs. 59, p < 0.001, scale of 20–100), indicating good content validity. Internal consistency (Cronbach’s alpha: 0.97) and reproducibility (intraclass correlation: 0.88) were good. Total ACP Engagement was higher among persons with chronic disease than those without (2.9 vs. 2.4, p < 0.01, scale of 1 to 5), indicating good psychometric support for construct validity and interpretability. Positive correlations of the ACP Engagement Survey and the General Self-Efficacy survey indicated good criterion validity (p < 0.05). Conclusions: This study provided good psychometric support for the validity and reliability of the Dutch 34-item ACP Engagement Survey. This instrument can be used to assess involvement in ACP in adults with and without chronic disease.

UR - http://www.scopus.com/inward/record.url?scp=85115731494&partnerID=8YFLogxK

U2 - 10.1186/s12874-021-01389-5

DO - 10.1186/s12874-021-01389-5

M3 - Article

C2 - 34563115

AN - SCOPUS:85115731494

SN - 1471-2288

VL - 21

JO - BMC Medical Research Methodology

JF - BMC Medical Research Methodology

IS - 1

M1 - 194

ER -

Measuring advance care planning behavior in Dutch adults: translation, cultural adaptation and validation of the Advance Care Planning Engagement Survey

Abstract

Bibliographical note

Access to Document

Other files and links

Fingerprint

Web-based Support of Advance Care Planning

Cite this