TY - JOUR
T1 - Multi-Stakeholder Opinion Statement on the Care of Individuals Born with Differences of Sex Development
T2 - Common Ground and Opportunities for Improvement
AU - Cools, Martine
AU - Cheng, Earl Y.
AU - Hall, Joanne
AU - Alderson, Julie
AU - Amies Oelschlager, Anne Marie
AU - Balen, Adam H.
AU - Chan, Yee Ming
AU - Geffner, Mitchell E.
AU - Gravholt, Claus H.
AU - Güran, Tülay
AU - Hoebeke, Piet
AU - Lee, Peter
AU - Magritte, Ellie
AU - Matos, Dina
AU - Mcelreavey, Ken
AU - Meyer-Bahlburg, Heino F.L.
AU - Rink, Richard C.
AU - Springer, Alexander
AU - Szymanski, Konrad M.
AU - Vilain, Eric
AU - Williams, Jo
AU - Wolffenbuttel, Katja P.
AU - Sandberg, David E.
AU - Subramaniam, Ramnath
N1 - Publisher Copyright: © 2024 The Author(s).
PY - 2025/4/1
Y1 - 2025/4/1
N2 - Background: In the last 15 years, the care provided for individuals born with differences of sex development (DSD) has evolved, with a strong emphasis on interdisciplinary approaches. However, these developments have not convinced some stakeholders to embrace the current model of care. This care model has also paid insufficient attention to socio-cultural differences and global inequalities. Summary: This article is an opinion statement, resulting from in-depth discussions and reflection among clinicians, patients, and family support organizations based in the USA and Europe, where we seek areas of common ground and try to identify opportunities to further develop resources. The product of these conversations is summarized in 10 panels. The corresponding sections provide additional discussion on some of the panel items. Key Messages: Participants identified areas of agreement, gained a deeper understanding of the reasons behind disagreements on certain matters, and identified the necessary steps to foster future consensus. We offer preliminary recommendations for guiding clinical management and resource allocation. By promoting a broader consensus, we aim to enhance the quality of care and well-being for individuals of all ages who have a DSD.
AB - Background: In the last 15 years, the care provided for individuals born with differences of sex development (DSD) has evolved, with a strong emphasis on interdisciplinary approaches. However, these developments have not convinced some stakeholders to embrace the current model of care. This care model has also paid insufficient attention to socio-cultural differences and global inequalities. Summary: This article is an opinion statement, resulting from in-depth discussions and reflection among clinicians, patients, and family support organizations based in the USA and Europe, where we seek areas of common ground and try to identify opportunities to further develop resources. The product of these conversations is summarized in 10 panels. The corresponding sections provide additional discussion on some of the panel items. Key Messages: Participants identified areas of agreement, gained a deeper understanding of the reasons behind disagreements on certain matters, and identified the necessary steps to foster future consensus. We offer preliminary recommendations for guiding clinical management and resource allocation. By promoting a broader consensus, we aim to enhance the quality of care and well-being for individuals of all ages who have a DSD.
UR - http://www.scopus.com/inward/record.url?scp=85195104154&partnerID=8YFLogxK
U2 - 10.1159/000536296
DO - 10.1159/000536296
M3 - Review article
C2 - 38310850
AN - SCOPUS:85195104154
SN - 1663-2818
VL - 98
SP - 226
EP - 242
JO - Hormone Research in Paediatrics
JF - Hormone Research in Paediatrics
IS - 2
ER -
