Parenting Children With a Cleft Lip With or Without Palate or a Visible Infantile Hemangioma: A Cross-Sectional Study of Distress and Parenting Stress

M. van Dalen; W. H. Leemreis; V. Kraaij; P. C.J. De Laat; S. G.M.A. Pasmans; S. L. Versnel; M. J. Koudstaal; M. H.J. Hillegers; E. M.W.J. Utens; J. M.E. Okkerse

doi:10.1177/1055665621993298

Parenting Children With a Cleft Lip With or Without Palate or a Visible Infantile Hemangioma: A Cross-Sectional Study of Distress and Parenting Stress

M. van Dalen, W. H. Leemreis, V. Kraaij, P. C.J. De Laat, S. G.M.A. Pasmans, S. L. Versnel, M. J. Koudstaal, M. H.J. Hillegers, E. M.W.J. Utens, J. M.E. Okkerse^*

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

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Abstract

OBJECTIVE: Parents of children with a medical condition and a visible difference can experience challenging situations. We evaluated distress and parenting stress in parents of children with a cleft lip with or without cleft palate (CL±P) or a visible infantile hemangioma (IH).

SETTING: This cross-sectional study took place in an academic medical hospital in Rotterdam, the Netherlands.

PARTICIPANTS: Three-hundred nine parents (mean age = 40.30, 56.00% mothers) of children with CL±P and 91 parents (mean age = 36.40, 58.24% mothers) of children with IH.

MAIN OUTCOME MEASURES: The Dutch version of the Parenting Stress Index - Short Form and the subscales Anxiety, Depression, and Hostility of the Symptom Checklist - 90.

RESULTS: One sample t tests and mixed linear modeling were used. On average, parents of children with CL±P and of children with IH showed significantly lower parenting stress compared to normative data. Anxiety was significantly lower in parents of children with CL±P than that in the norm group. Visibility of the condition was not related to distress or parenting stress. Child behavioral problems were positively related to parenting stress, depression, and hostility.

CONCLUSIONS: Parents of children with CL±P and IH report less distress and parenting stress compared to the norm. On average, these parents seem well adjusted. A practical implication is to monitor parents of children with behavioral problems.

Original language	English
Pages (from-to)	1536-1546
Number of pages	11
Journal	Cleft Palate-Craniofacial Journal
Volume	58
Issue number	12
Early online date	15 Feb 2021
DOIs	https://doi.org/10.1177/1055665621993298 https://doi.org/10.1177/1055665621993298
Publication status	Published - Dec 2021

Bibliographical note

Funding Information:
The author(s) received no financial support for the research, authorship, and/or publication of this article: This work was supported by “Stichting In Face.”

Funding Information:
The authors thank Prof Dr Oranje, the initiator of the present study who regretfully passed away during the writing of this article. Furthermore, the authors thank Gerard Madern, Claartje Plaisier, and Ditta van Dijk for their collaboration on the study design and data gathering. The author(s) received no financial support for the research, authorship, and/or publication of this article: This work was supported by ?Stichting In Face.?

Publisher Copyright:
© 2021, American Cleft Palate-Craniofacial Association.

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EMC MM-04-54-08-A

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Cite this

van Dalen, M., Leemreis, W. H., Kraaij, V., De Laat, P. C. J., Pasmans, S. G. M. A., Versnel, S. L., Koudstaal, M. J., Hillegers, M. H. J., Utens, E. M. W. J., & Okkerse, J. M. E. (2021). Parenting Children With a Cleft Lip With or Without Palate or a Visible Infantile Hemangioma: A Cross-Sectional Study of Distress and Parenting Stress. Cleft Palate-Craniofacial Journal, 58(12), 1536-1546. https://doi.org/10.1177/1055665621993298, https://doi.org/10.1177/1055665621993298

@article{aac640c277ee4ae2ad7dac3b839a5698,

title = "Parenting Children With a Cleft Lip With or Without Palate or a Visible Infantile Hemangioma: A Cross-Sectional Study of Distress and Parenting Stress",

abstract = "OBJECTIVE: Parents of children with a medical condition and a visible difference can experience challenging situations. We evaluated distress and parenting stress in parents of children with a cleft lip with or without cleft palate (CL±P) or a visible infantile hemangioma (IH).SETTING: This cross-sectional study took place in an academic medical hospital in Rotterdam, the Netherlands.PARTICIPANTS: Three-hundred nine parents (mean age = 40.30, 56.00% mothers) of children with CL±P and 91 parents (mean age = 36.40, 58.24% mothers) of children with IH.MAIN OUTCOME MEASURES: The Dutch version of the Parenting Stress Index - Short Form and the subscales Anxiety, Depression, and Hostility of the Symptom Checklist - 90.RESULTS: One sample t tests and mixed linear modeling were used. On average, parents of children with CL±P and of children with IH showed significantly lower parenting stress compared to normative data. Anxiety was significantly lower in parents of children with CL±P than that in the norm group. Visibility of the condition was not related to distress or parenting stress. Child behavioral problems were positively related to parenting stress, depression, and hostility.CONCLUSIONS: Parents of children with CL±P and IH report less distress and parenting stress compared to the norm. On average, these parents seem well adjusted. A practical implication is to monitor parents of children with behavioral problems.",

author = "{van Dalen}, M. and Leemreis, {W. H.} and V. Kraaij and {De Laat}, {P. C.J.} and Pasmans, {S. G.M.A.} and Versnel, {S. L.} and Koudstaal, {M. J.} and Hillegers, {M. H.J.} and Utens, {E. M.W.J.} and Okkerse, {J. M.E.}",

note = "Funding Information: The author(s) received no financial support for the research, authorship, and/or publication of this article: This work was supported by “Stichting In Face.” Funding Information: The authors thank Prof Dr Oranje, the initiator of the present study who regretfully passed away during the writing of this article. Furthermore, the authors thank Gerard Madern, Claartje Plaisier, and Ditta van Dijk for their collaboration on the study design and data gathering. The author(s) received no financial support for the research, authorship, and/or publication of this article: This work was supported by ?Stichting In Face.? Publisher Copyright: {\textcopyright} 2021, American Cleft Palate-Craniofacial Association.",

year = "2021",

month = dec,

doi = "10.1177/1055665621993298",

language = "English",

volume = "58",

pages = "1536--1546",

journal = "Cleft Palate-Craniofacial Journal",

issn = "1055-6656",

publisher = "American Cleft Palate Craniofacial Association",

number = "12",

}

van Dalen, M, Leemreis, WH, Kraaij, V, De Laat, PCJ , Pasmans, SGMA , Versnel, SL, Koudstaal, MJ, Hillegers, MHJ , Utens, EMWJ & Okkerse, JME 2021, 'Parenting Children With a Cleft Lip With or Without Palate or a Visible Infantile Hemangioma: A Cross-Sectional Study of Distress and Parenting Stress', Cleft Palate-Craniofacial Journal, vol. 58, no. 12, pp. 1536-1546. https://doi.org/10.1177/1055665621993298, https://doi.org/10.1177/1055665621993298

TY - JOUR

T1 - Parenting Children With a Cleft Lip With or Without Palate or a Visible Infantile Hemangioma

T2 - A Cross-Sectional Study of Distress and Parenting Stress

AU - van Dalen, M.

AU - Leemreis, W. H.

AU - Kraaij, V.

AU - De Laat, P. C.J.

AU - Pasmans, S. G.M.A.

AU - Versnel, S. L.

AU - Koudstaal, M. J.

AU - Hillegers, M. H.J.

AU - Utens, E. M.W.J.

AU - Okkerse, J. M.E.

N1 - Funding Information: The author(s) received no financial support for the research, authorship, and/or publication of this article: This work was supported by “Stichting In Face.” Funding Information: The authors thank Prof Dr Oranje, the initiator of the present study who regretfully passed away during the writing of this article. Furthermore, the authors thank Gerard Madern, Claartje Plaisier, and Ditta van Dijk for their collaboration on the study design and data gathering. The author(s) received no financial support for the research, authorship, and/or publication of this article: This work was supported by ?Stichting In Face.? Publisher Copyright: © 2021, American Cleft Palate-Craniofacial Association.

PY - 2021/12

Y1 - 2021/12

N2 - OBJECTIVE: Parents of children with a medical condition and a visible difference can experience challenging situations. We evaluated distress and parenting stress in parents of children with a cleft lip with or without cleft palate (CL±P) or a visible infantile hemangioma (IH).SETTING: This cross-sectional study took place in an academic medical hospital in Rotterdam, the Netherlands.PARTICIPANTS: Three-hundred nine parents (mean age = 40.30, 56.00% mothers) of children with CL±P and 91 parents (mean age = 36.40, 58.24% mothers) of children with IH.MAIN OUTCOME MEASURES: The Dutch version of the Parenting Stress Index - Short Form and the subscales Anxiety, Depression, and Hostility of the Symptom Checklist - 90.RESULTS: One sample t tests and mixed linear modeling were used. On average, parents of children with CL±P and of children with IH showed significantly lower parenting stress compared to normative data. Anxiety was significantly lower in parents of children with CL±P than that in the norm group. Visibility of the condition was not related to distress or parenting stress. Child behavioral problems were positively related to parenting stress, depression, and hostility.CONCLUSIONS: Parents of children with CL±P and IH report less distress and parenting stress compared to the norm. On average, these parents seem well adjusted. A practical implication is to monitor parents of children with behavioral problems.

AB - OBJECTIVE: Parents of children with a medical condition and a visible difference can experience challenging situations. We evaluated distress and parenting stress in parents of children with a cleft lip with or without cleft palate (CL±P) or a visible infantile hemangioma (IH).SETTING: This cross-sectional study took place in an academic medical hospital in Rotterdam, the Netherlands.PARTICIPANTS: Three-hundred nine parents (mean age = 40.30, 56.00% mothers) of children with CL±P and 91 parents (mean age = 36.40, 58.24% mothers) of children with IH.MAIN OUTCOME MEASURES: The Dutch version of the Parenting Stress Index - Short Form and the subscales Anxiety, Depression, and Hostility of the Symptom Checklist - 90.RESULTS: One sample t tests and mixed linear modeling were used. On average, parents of children with CL±P and of children with IH showed significantly lower parenting stress compared to normative data. Anxiety was significantly lower in parents of children with CL±P than that in the norm group. Visibility of the condition was not related to distress or parenting stress. Child behavioral problems were positively related to parenting stress, depression, and hostility.CONCLUSIONS: Parents of children with CL±P and IH report less distress and parenting stress compared to the norm. On average, these parents seem well adjusted. A practical implication is to monitor parents of children with behavioral problems.

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DO - 10.1177/1055665621993298

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C2 - 33583213

AN - SCOPUS:85100874929

SN - 1055-6656

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Parenting Children With a Cleft Lip With or Without Palate or a Visible Infantile Hemangioma: A Cross-Sectional Study of Distress and Parenting Stress

Abstract

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