TY - JOUR
T1 - Patient, parent and professional expert perspectives on personalized regenerative implants
T2 - a qualitative focus group study
AU - Daal, Manon van
AU - de Kanter, Anne Floor J.
AU - Custers, Roel J.H.
AU - Martínez-Sanz, Elena
AU - Bredenoord, Annelien L.
AU - Graeff, Nienke de
N1 - Publisher Copyright:
© 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
PY - 2024
Y1 - 2024
N2 - Background: Perspectives of patients, parents and professional experts on personalized regenerative implants for regenerative medicine purposes are largely unknown. Method: To better understand these perspectives, we conducted four focus groups with professional experts of mixed European nationality (n = 8), Dutch patients with regular implants (n = 8), Dutch and Belgian (n = 5) and Spanish (n = 8) parents of children with cleft palate. Results: Two overarching themes were identified: ‘patient-centered research and care’ and ‘ambivalent attitudes toward personalized regenerative implants’. Discussion: The results reveal that stakeholders should adopt a participatory rather than an impairment discourse and address the ambivalence among professional experts, patients and parents. Conclusion: Considering stakeholder perspectives facilitates ethical and responsible development and use of personalized regenerative implants.
AB - Background: Perspectives of patients, parents and professional experts on personalized regenerative implants for regenerative medicine purposes are largely unknown. Method: To better understand these perspectives, we conducted four focus groups with professional experts of mixed European nationality (n = 8), Dutch patients with regular implants (n = 8), Dutch and Belgian (n = 5) and Spanish (n = 8) parents of children with cleft palate. Results: Two overarching themes were identified: ‘patient-centered research and care’ and ‘ambivalent attitudes toward personalized regenerative implants’. Discussion: The results reveal that stakeholders should adopt a participatory rather than an impairment discourse and address the ambivalence among professional experts, patients and parents. Conclusion: Considering stakeholder perspectives facilitates ethical and responsible development and use of personalized regenerative implants.
UR - https://www.scopus.com/pages/publications/85203110916
U2 - 10.1080/17460751.2024.2386214
DO - 10.1080/17460751.2024.2386214
M3 - Article
C2 - 39222046
AN - SCOPUS:85203110916
SN - 1746-0751
VL - 19
SP - 393
EP - 406
JO - Regenerative Medicine
JF - Regenerative Medicine
IS - 7-8
ER -