Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks

CEM Hollak; M Biegstraaten; MR Baumgartner; N Belmatoug; B Bembi; A Bosch; M Brouwers; H Dekker; D Dobbelaere; M Engelen; M C Groenendijk; R Lachmann; Janneke Langendonk; Mirjam Langeveld; G Linthorst; E Morava; BT Poll-The; S Rahman; ME Rubio-Gozalbo; U Spiekerkoetter; E Treacy; R Wanders; J Zschocke; R Hagendijk

doi:10.1186/s13023-016-0383-5

Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks

CEM Hollak, M Biegstraaten, MR Baumgartner, N Belmatoug, B Bembi, A Bosch, M Brouwers, H Dekker, D Dobbelaere, M Engelen, M C Groenendijk, R Lachmann, Janneke Langendonk, Mirjam Langeveld, G Linthorst, E Morava, BT Poll-The, S Rahman, ME Rubio-Gozalbo, U SpiekerkoetterE Treacy, R Wanders, J Zschocke, R Hagendijk

Internal Medicine

Research output: Contribution to journal › Article › Academic › peer-review

10 Citations (Scopus)

3 Downloads (Pure)

Original language	Undefined/Unknown
Article number	7
Journal	Orphanet Journal of Rare Diseases
Volume	11
DOIs	https://doi.org/10.1186/s13023-016-0383-5
Publication status	Published - 2016

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10.1186/s13023-016-0383-5

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http://hdl.handle.net/1765/86358

Cite this

Hollak, CEM., Biegstraaten, M., Baumgartner, MR., Belmatoug, N., Bembi, B., Bosch, A., Brouwers, M., Dekker, H., Dobbelaere, D., Engelen, M., Groenendijk, M. C., Lachmann, R., Langendonk, J., Langeveld, M., Linthorst, G., Morava, E., Poll-The, BT., Rahman, S., Rubio-Gozalbo, ME., ... Hagendijk, R. (2016). Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks. Orphanet Journal of Rare Diseases, 11, [7]. https://doi.org/10.1186/s13023-016-0383-5

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Hollak, CEM, Biegstraaten, M, Baumgartner, MR, Belmatoug, N, Bembi, B, Bosch, A, Brouwers, M, Dekker, H, Dobbelaere, D, Engelen, M, Groenendijk, MC, Lachmann, R, Langendonk, J, Langeveld, M, Linthorst, G, Morava, E, Poll-The, BT, Rahman, S, Rubio-Gozalbo, ME, Spiekerkoetter, U, Treacy, E, Wanders, R, Zschocke, J & Hagendijk, R 2016, 'Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks', Orphanet Journal of Rare Diseases, vol. 11, 7. https://doi.org/10.1186/s13023-016-0383-5

TY - JOUR

T1 - Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks

AU - Hollak, CEM

AU - Biegstraaten, M

AU - Baumgartner, MR

AU - Belmatoug, N

AU - Bembi, B

AU - Bosch, A

AU - Brouwers, M

AU - Dekker, H

AU - Dobbelaere, D

AU - Engelen, M

AU - Groenendijk, M C

AU - Lachmann, R

AU - Langendonk, Janneke

AU - Langeveld, Mirjam

AU - Linthorst, G

AU - Morava, E

AU - Poll-The, BT

AU - Rahman, S

AU - Rubio-Gozalbo, ME

AU - Spiekerkoetter, U

AU - Treacy, E

AU - Wanders, R

AU - Zschocke, J

AU - Hagendijk, R

PY - 2016

Y1 - 2016

U2 - 10.1186/s13023-016-0383-5

DO - 10.1186/s13023-016-0383-5

M3 - Article

VL - 11

JO - Orphanet Journal of Rare Diseases

JF - Orphanet Journal of Rare Diseases

SN - 1750-1172

M1 - 7

ER -