Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks

CEM Hollak; M Biegstraaten; MR Baumgartner; N Belmatoug; B Bembi; A Bosch; M Brouwers; H Dekker; D Dobbelaere; M Engelen; M C Groenendijk; R Lachmann; Janneke Langendonk; Mirjam Langeveld; G Linthorst; E Morava; BT Poll-The; S Rahman; ME Rubio-Gozalbo; U Spiekerkoetter; E Treacy; R Wanders; J Zschocke; R Hagendijk

doi:10.1186/s13023-016-0383-5

Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks

CEM Hollak
, M Biegstraaten
, MR Baumgartner
, N Belmatoug
, B Bembi
, A Bosch
, M Brouwers
, H Dekker
, D Dobbelaere
, M Engelen
, M C Groenendijk
, R Lachmann
, Janneke Langendonk
, Mirjam Langeveld
, G Linthorst
, E Morava
, BT Poll-The
, S Rahman
, ME Rubio-Gozalbo
, U Spiekerkoetter

E Treacy, R Wanders, J Zschocke, R Hagendijk

Internal Medicine

Research output: Contribution to journal › Article › Academic › peer-review

13 Citations (Scopus)

23 Downloads (Pure)

Original language	Undefined/Unknown
Article number	7
Journal	Orphanet Journal of Rare Diseases
Volume	11
DOIs	https://doi.org/10.1186/s13023-016-0383-5
Publication status	Published - 2016

Research programs

EMC COEUR-09
EMC COEUR-09-39-01

Access to Document

10.1186/s13023-016-0383-5

REPUB_86358-OA.pdfFinal published version, 450 KB

http://hdl.handle.net/1765/86358

Cite this

Hollak, CEM., Biegstraaten, M., Baumgartner, MR., Belmatoug, N., Bembi, B., Bosch, A., Brouwers, M., Dekker, H., Dobbelaere, D., Engelen, M., Groenendijk, M. C., Lachmann, R., Langendonk, J., Langeveld, M., Linthorst, G., Morava, E., Poll-The, BT., Rahman, S., Rubio-Gozalbo, ME., ... Hagendijk, R. (2016). Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks. Orphanet Journal of Rare Diseases, 11, Article 7. https://doi.org/10.1186/s13023-016-0383-5

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Hollak, CEM, Biegstraaten, M, Baumgartner, MR, Belmatoug, N, Bembi, B, Bosch, A, Brouwers, M, Dekker, H, Dobbelaere, D, Engelen, M, Groenendijk, MC, Lachmann, R, Langendonk, J, Langeveld, M, Linthorst, G, Morava, E, Poll-The, BT, Rahman, S, Rubio-Gozalbo, ME, Spiekerkoetter, U, Treacy, E, Wanders, R, Zschocke, J & Hagendijk, R 2016, 'Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks', Orphanet Journal of Rare Diseases, vol. 11, 7. https://doi.org/10.1186/s13023-016-0383-5

TY - JOUR

T1 - Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks

AU - Hollak, CEM

AU - Biegstraaten, M

AU - Baumgartner, MR

AU - Belmatoug, N

AU - Bembi, B

AU - Bosch, A

AU - Brouwers, M

AU - Dekker, H

AU - Dobbelaere, D

AU - Engelen, M

AU - Groenendijk, M C

AU - Lachmann, R

AU - Langendonk, Janneke

AU - Langeveld, Mirjam

AU - Linthorst, G

AU - Morava, E

AU - Poll-The, BT

AU - Rahman, S

AU - Rubio-Gozalbo, ME

AU - Spiekerkoetter, U

AU - Treacy, E

AU - Wanders, R

AU - Zschocke, J

AU - Hagendijk, R

PY - 2016

Y1 - 2016

U2 - 10.1186/s13023-016-0383-5

DO - 10.1186/s13023-016-0383-5

M3 - Article

C2 - 26809514

SN - 1750-1172

VL - 11

JO - Orphanet Journal of Rare Diseases

JF - Orphanet Journal of Rare Diseases

M1 - 7

ER -