Predictive Factors of Inactive Patient Participation in an Inflammatory Bowel Disease Learning Health System: A Longitudinal Cohort Study

Nhu Dang; Soryan Kumar; Michelle Kwon; Michael Cradeur; Katherine Zeven; Mihir Khunte; Daniel Marino; Chung Sang Tse; Welmoed K van Deen; Adrian Lee; Kendra Kamp; Ridhima Oberai; Gil Y Melmed; Corey A Siegel; S Alandra Weaver; Samir A Shah

doi:10.1093/ibd/izae099

Predictive Factors of Inactive Patient Participation in an Inflammatory Bowel Disease Learning Health System: A Longitudinal Cohort Study

Nhu Dang^*, Soryan Kumar, Michelle Kwon, Michael Cradeur, Katherine Zeven, Mihir Khunte, Daniel Marino, Chung Sang Tse, Welmoed K van Deen, Adrian Lee, Kendra Kamp, Ridhima Oberai, Gil Y Melmed, Corey A Siegel, S Alandra Weaver, Samir A Shah

^*Corresponding author for this work

Health Services Management & Organisation (HSMO)

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Abstract

Patient participation is crucial to learning health systems that leverage patient data to improve care practices. Age, history of anxiety or depression, and frequency of clinic visits were associated with inactive participation in an inflammatory bowel disease learning health system.

Original language	English
Article number	izae099
Pages (from-to)	593-596
Number of pages	4
Journal	Inflammatory Bowel Diseases
Volume	31
Issue number	2
Early online date	22 May 2024
DOIs	https://doi.org/10.1093/ibd/izae099
Publication status	Published - 1 Feb 2025

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Publisher Copyright:
© The Author(s) 2024. Published by Oxford University Press on behalf of Crohn's & Colitis Foundation. All rights reserved.

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izae099Final published version, 343 KBLicence: Article 25fa Dutch Copyright Act

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Dang, N., Kumar, S., Kwon, M., Cradeur, M., Zeven, K., Khunte, M., Marino, D., Tse, C. S., van Deen, W. K., Lee, A., Kamp, K., Oberai, R., Melmed, G. Y., Siegel, C. A., Weaver, S. A., & Shah, S. A. (2025). Predictive Factors of Inactive Patient Participation in an Inflammatory Bowel Disease Learning Health System: A Longitudinal Cohort Study. Inflammatory Bowel Diseases, 31(2), 593-596. Article izae099. https://doi.org/10.1093/ibd/izae099

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abstract = "Patient participation is crucial to learning health systems that leverage patient data to improve care practices. Age, history of anxiety or depression, and frequency of clinic visits were associated with inactive participation in an inflammatory bowel disease learning health system.",

author = "Nhu Dang and Soryan Kumar and Michelle Kwon and Michael Cradeur and Katherine Zeven and Mihir Khunte and Daniel Marino and Tse, {Chung Sang} and {van Deen}, {Welmoed K} and Adrian Lee and Kendra Kamp and Ridhima Oberai and Melmed, {Gil Y} and Siegel, {Corey A} and Weaver, {S Alandra} and Shah, {Samir A}",

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Dang, N, Kumar, S, Kwon, M, Cradeur, M, Zeven, K, Khunte, M, Marino, D, Tse, CS, van Deen, WK, Lee, A, Kamp, K, Oberai, R, Melmed, GY, Siegel, CA, Weaver, SA & Shah, SA 2025, 'Predictive Factors of Inactive Patient Participation in an Inflammatory Bowel Disease Learning Health System: A Longitudinal Cohort Study', Inflammatory Bowel Diseases, vol. 31, no. 2, izae099, pp. 593-596. https://doi.org/10.1093/ibd/izae099

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AU - Zeven, Katherine

AU - Khunte, Mihir

AU - Marino, Daniel

AU - Tse, Chung Sang

AU - van Deen, Welmoed K

AU - Lee, Adrian

AU - Kamp, Kendra

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Predictive Factors of Inactive Patient Participation in an Inflammatory Bowel Disease Learning Health System: A Longitudinal Cohort Study

Abstract

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