Abstract
Objectives: Only a few studies have investigated the quality of end-of-life care provided to nursing home residents with dementia as perceived by their relatives. We aim to investigate the quality of end-of-life care as perceived by relatives and to investigate which characteristics of nursing home residents with dementia, their relatives and the care they received are associated with the evaluation the quality of end-of-life care as perceived by the relatives. Methods: Data used were from two cross-sectional studies performed in Flanders in 2010 and 2015. Questionnaires were sent to bereaved relatives of nursing home residents with dementia and 208 questionnaires were returned. The quality of end-of-life care as perceived by the relatives was measured with the End-of-Life with Dementia-Satisfaction With Care scale (scores ranging 10-40). Results: In total, 208 (response rate2010: 51.05%, response rate2015=60.65%) bereaved relatives responded to the questionnaire. The quality of end-of-life care as perceived by them was positively associated with the nursing home resident being male (b=1.78, p
| Original language | English |
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| Article number | 003497 |
| Journal | BMJ Supportive and Palliative Care |
| DOIs | |
| Publication status | Published - 16 Jun 2022 |
Bibliographical note
Funding: This work was supported by the European Union’s Seventh Framework Programme (FP7/2007e2013) under grant agreement 603111 (Palliative Care for Older People in Care and Nursing Homes in Europe (PACE) project Palliative Care for Older People, 2015). The authors thank all nursinghomes who participated in the study. The authors thank the PACE consortium. The data collection that was part of the 2010 Dying Well With Dementia Study was supported by a major grant from the Vrije Universiteit Brussel (GOA, HW and VUB).