Abstract
The European Hidradenitis Suppurativa Foundation (EHSF) e.V. has taken several initiatives for collaborative studies. They result from the data of the European Registry of Hidradenitis Suppurativa (ERHS) based on the knowledge obtained from the regional Northern countries (HISREG) and Italian (IRHIS) registries and the real-world data generated from claims data from insurance databases. Multicentre studies, such as the Hidradenitis Suppurativa collaborative study of subtypes (HORUS) and the Global Hidradenitis Suppurativa Atlas (GHISA), are planned to provide an ideal complement to the register studies. Most recently, the role of EHSF as a coordinator or key player is being explored in multiple genetic studies, such as a genome-wide association study (GWAS) and the exome sequencing and cellular/molecular profiling project, which will speed up gene and drug discovery in HS.
| Original language | English |
|---|---|
| Pages (from-to) | 22-28 |
| Number of pages | 7 |
| Journal | Experimental Dermatology |
| Volume | 31 |
| Issue number | S1 |
| Publication status | Published - Sept 2022 |
Bibliographical note
Funding Information:The EHSF exome sequencing and cellular/molecular profiling project will be supported by funding from a third industrial party (pending agreement finalization), the European Academy of Dermatology and Venereology project grant PPRC-2020-8 to CCZ and the Brandenburg Medical School Theodor Fontane project grant 19630051 to Dr. Georgios Nikolakis, Departments of Dermatology, Venereology, Allergology and Immunology, Dessau Medical Center, Dessau, Germany and CCZ. The Department of Dermatology, Zeeland University Hospital, Roskilde, Denmark; the Department of Dermatology, Erasmus University Medical Center, Rotterdam, The Netherlands; the Department of Dermatology, Université Libre de Bruxelles, Brussels, Belgium; and the Departments of Dermatology, Venereology, Allergology and Immunology, Dessau Medical Center, Dessau, Germany are healthcare providers of the European Reference Network for Rare and Complex Skin Diseases (ERN Skin-ALLOCATE Skin group).
Funding Information:
The EHSF exome sequencing and cellular/molecular profiling project will be supported by funding from a third industrial party (pending agreement finalization), the European Academy of Dermatology and Venereology project grant PPRC‐2020‐8 to CCZ and the Brandenburg Medical School Theodor Fontane project grant 19630051 to Dr. Georgios Nikolakis, Departments of Dermatology, Venereology, Allergology and Immunology, Dessau Medical Center, Dessau, Germany and CCZ. The Department of Dermatology, Zeeland University Hospital, Roskilde, Denmark; the Department of Dermatology, Erasmus University Medical Center, Rotterdam, The Netherlands; the Department of Dermatology, Université Libre de Bruxelles, Brussels, Belgium; and the Departments of Dermatology, Venereology, Allergology and Immunology, Dessau Medical Center, Dessau, Germany are healthcare providers of the European Reference Network for Rare and Complex Skin Diseases (ERN Skin‐ALLOCATE Skin group).
Publisher Copyright:
© 2022 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.