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Relapses, Comorbidities, and Predictors of Outcome in Anti-GABAA Receptor Encephalitis

  • Claudia Papi
  • , Chiara Milano
  • , Anti-GABAAR encephalitis study group
  • , Laura Marmolejo
  • , Ana Beatriz Serafim
  • , Esther Aguilar
  • , Mar Guasp
  • , Elianet Fonseca
  • , Mateus Mistieri Simabukuro
  • , Raffaele Iorio
  • , Yuki Fukami
  • , Maria Lucia Schmitz Ferreira Santos
  • , Takashi Miwa
  • , Takashi Araga
  • , Yuto Uchida
  • , Masanori Kurihara
  • , Satoshi Okada
  • , Luz Victoria Garcia
  • , Kenichi Kaida
  • , Natalia Spinola Costa da Cunha
  • Alberto Vogrig, Florian Lamblin, Juna M. de Vries, Livia Almeida Dutra, Romana Höftberger, Maarten J. Titulaer, Jesús Planagumà, Lidia Sabater, Eugenia Martinez-Hernandez, Thais Armangué, Francesc Graus, Takahiro Iizuka, Josep Dalmau, Marianna Spatola*
*Corresponding author for this work
  • University of Barcelona
  • Catholic University of the Sacred Heart
  • University of Pisa
  • Hospital Clinic de Barcelona
  • Universidade de São Paulo
  • Agostino Gemelli University Hospital Foundation IRCCS
  • Nagoya University Graduate School of Medicine
  • Hospital Pequeno Príncipe
  • National Hospital Organization Osaka Minami Medical Center
  • St. Marianna University School of Medicine
  • The University of Tokyo
  • Tokyo Dental College
  • Hepatología y Nutrición del INSN (Instituto Nacional de la Salud)
  • Saitama Medical University
  • Hospital da Criança de Brasília José Alencar
  • Azienda Sanitaria Universitaria Integrata di Udine
  • University of Udine
  • La Réunion University Hospital
  • Hospital Israelita Albert Einstein
  • Medical University of Vienna
  • Centro de Investigación Biomédica en Red (CIBER)
  • Kitasato University School of Medicine
  • University of Pennsylvania

Research output: Contribution to journalArticleAcademicpeer-review

2 Citations (Scopus)
4 Downloads (Pure)

Abstract

Objectives: 

To characterize the magnetic resonance imaging (MRI) lesion dynamics, comorbidities, predictors of relapse, and outcomes in anti-γ-aminobutyric acid type A receptor (GABAAR) encephalitis, and assess the utility of LIM-domain-only-protein 5 (LMO5) antibodies as tumor markers. 

Methods:

GABAAR antibodies were confirmed by 2 techniques in serum or cerebrospinal fluid. Long-term outcomes were defined as good (modified Rankin scale, mRS = 0–1) or poor (mRS 2–5) at ≥12 months. LMO5 antibodies were assessed by cell-based assays and Western blot. 

Results: 

Thirty-three patients were identified (4 children, 29 adults; median age, 5.5 and 60 years; 61% male). Ten patients (10/32, 31%) had concurrent systemic autoimmunity. Adults presented with seizures and cognitive/behavioral symptoms, often with thymoma, gastrointestinal, or other tumors (18/33, 55%), whereas children frequently had seizures and ataxia with cerebellar MRI lesions. Multifocal T2/fluid-attenuated inversion recovery hyperintensities were present at onset in 23 of 31 (74%) or developed later in those with absent or single lesions. Lesions showed dynamic changes, suggesting ongoing inflammation even without clinical correlate. Relapses occurred in 17 of 31 (55%, all adults) and were associated with older age (p = 0.02) and lack of second-line immunotherapy (p = 0.02). Four patients (4/33, 12%) died. After a 32.5-month median follow-up, 9 of 20 (45%) had persistent cognitive deficits, and 6 of 20 (30%) had a poor outcome, which was associated with relapses (p = 0.04). LMO5 antibodies were absent in patients and controls. 

Interpretation: 

Anti-GABAAR encephalitis shows age-dependent presentations, most commonly seizures. MRI reveals dynamic changes consistent with an ongoing “clinically silent” inflammation. Relapses and cognitive sequelae are common and associate with not receiving second-line immunotherapy. LMO5 antibodies lack tumor-predictive value. ANN NEUROL 2026;100:139–150.

Original languageEnglish
Pages (from-to)139-150
Number of pages12
JournalAnnals of Neurology
Volume100
Issue number1
DOIs
Publication statusPublished - Jul 2026

Bibliographical note

Publisher Copyright:
© 2026 The Author(s). Annals of Neurology published by Wiley Periodicals LLC on behalf of American Neurological Association.

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