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Sharing brain imaging data in the Open Science era: how and why?

  • Kathrin Giehl
  • , Henk Jan Mutsaerts
  • , Kristien Aarts
  • , Frederik Barkhof
  • , Svenja Caspers
  • , Gaël Chetelat
  • , Marie Elisabeth Colin
  • , Emrah Düzel
  • , Giovanni B. Frisoni
  • , M. Arfan Ikram
  • , Jorge Jovicich
  • , Silvia Morbelli
  • , Wolfgang Oertel
  • , Christian Paret
  • , Daniela Perani
  • , Petra Ritter
  • , Bàrbara Segura
  • , Laura E.M. Wisse
  • , Elke De Witte
  • , Stefano F. Cappa
  • Thilo van Eimeren*
*Corresponding author for this work
  • University of Cologne
  • Jülich Research Centre
  • VU University Medical Center
  • Amsterdam UMC
  • European Brain Council
  • University College London
  • Universitätsklinikum Düsseldorf
  • Université de Caen Normandie
  • EBRAINS AISBL
  • Otto von Guericke University Magdeburg
  • Center for Neurodegenerative Diseases (Magdeburg)
  • University Hospital of Geneva
  • University of Trento
  • Azienda Ospedaliera - Universitaria Città della Salute e della Scienza di Torino
  • University of Turin
  • Universität Marburg
  • Heidelberg University 
  • Vita-Salute San Raffaele University
  • Berlin Institute of Health
  • Charité – Universitätsmedizin Berlin
  • Bernstein Focus State Dependencies of Learning and Bernstein Center for Computational Neuroscience
  • Einstein Center for Neuroscience Berlin
  • Einstein Center for Digital Future
  • University of Barcelona
  • August Pi i Sunyer Biomedical Research Institute
  • Instituto de Salud Carlos III
  • Lund University
  • University Institute of Advanced Studies
  • IRCCS Fondazione Istituto Neurologico Casimiro Mondino - Pavia

Research output: Contribution to journalReview articleAcademicpeer-review

14 Citations (Scopus)
32 Downloads (Pure)

Abstract

The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised application of the General Data Protection Regulation across EU countries. Finally, we suggest the development of a system that makes data count by recognising the generation and sharing of data as a highly valuable contribution to the community.

Original languageEnglish
Pages (from-to)e526-e535
JournalThe Lancet Digital Health
Volume6
Issue number7
DOIs
Publication statusPublished - Jul 2024

Bibliographical note

Publisher Copyright: © 2024 Elsevier Ltd

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being

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