Standardising the Collection of Socio-Demographic Data in Pain Research: Introducing consensus recommendations for a minimum dataset

  • Emma L Karran*
  • , Aidan G Cashin
  • , Alessandro Chiarotto
  • , Saurab Sharma
  • , Trevor Barker
  • , Mark A Boyd
  • , Lara J Maxwell
  • , Vina Mohabir
  • , Jennifer Petkovic
  • , Peter Tugwell
  • , G Lorimer Moseley
  • *Corresponding author for this work

Research output: Contribution to journalComment/Letter to the editorAcademicpeer-review

Abstract

The 'ISSHOOs (Identifying Social factors that Stratify Health Opportunities and Outcomes) in pain research' project has developed consensus-derived recommendations to address the inadequacy and inconsistency of socio-demographic data collection and reporting in human adult pain research. The recently published recommendations offer a highly useful, globally relevant and adaptable resource that operationalises the collection of a minimum dataset of important equity-relevant information. In this Commentary we provide a brief overview of the ISSHOOs project and the resulting recommendations - comprising Set A: the 'minimum dataset' and Set B: an extended dataset of optional (equity-relevant) items; and we draw attention to a separate 'explanation and elaboration' manuscript. We discuss the implications of routine adoption of the ISSHOOs recommendations, including limitations, implementation considerations, and the potential for both benefits and harms to be associated with their use. The overarching goal of the ISSHOOs Collaboration is to prompt a small but widespread shift in research practice that promotes research transparency, integrity and value and advances health equity for people with pain.

Original languageEnglish
Article numbere70194
Pages (from-to)105645
JournalJournal of Pain
Volume30
Issue number1
DOIs
Publication statusPublished - Feb 2026

Bibliographical note

Copyright © 2025 United States Association for the Study of Pain, Inc. Published by Elsevier Inc. All rights reserved.

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being

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