TY - JOUR
T1 - Surveillance of adults with congenital heart disease
T2 - Current guidelines and actual clinical practice
AU - Roos-Hesselink, Jolien W.
AU - Pelosi, Chiara
AU - Brida, Margarita
AU - De Backer, Julie
AU - Ernst, Sabine
AU - Budts, Werner
AU - Baumgartner, Helmut
AU - Oechslin, Erwin
AU - Tobler, Daniel
AU - Kovacs, Adrienne H.
AU - Di Salvo, Giovanni
AU - Kluin, Jolanda
AU - Gatzoulis, Michael A.
AU - Diller, Gerhard P.
N1 - Publisher Copyright:
© 2024 The Authors
PY - 2024/7/15
Y1 - 2024/7/15
N2 - Background and aim: Congenital heart disease (CHD) is the most common birth defect with prevalence of 0.8%. Thanks to tremendous progress in medical and surgical practice, nowadays, >90% of children survive into adulthood. Recently European Society of Cardiology (ESC), American College of Cardiology (ACC)/ American Heart Association (AHA) issued guidelines which offer diagnostic and therapeutic recommendations for the different defect categories. However, the type of technical exams and their frequency of follow-up may vary largely between clinicians and centres. We aimed to present an overview of available diagnostic modalities and describe current surveillance practices by cardiologists taking care of adults with CHD (ACHD).Methods and results: A questionnaire was used to assess the frequency cardiologists treating ACHD for at least one year administrated the most common diagnostic tests for ACHD. The most frequently employed diagnostic modalities were ECG and echocardiography for both mild and moderate/severe CHD. Sixty-seven percent of respondents reported that they routinely address psychosocial well-being. Conclusion: Differences exist between reported current clinical practice and published guidelines. This is particularly true for the care of patients with mild lesions. In addition, some differences exist between ESC and American guidelines, with more frequent surveillance suggested by the Americans.
AB - Background and aim: Congenital heart disease (CHD) is the most common birth defect with prevalence of 0.8%. Thanks to tremendous progress in medical and surgical practice, nowadays, >90% of children survive into adulthood. Recently European Society of Cardiology (ESC), American College of Cardiology (ACC)/ American Heart Association (AHA) issued guidelines which offer diagnostic and therapeutic recommendations for the different defect categories. However, the type of technical exams and their frequency of follow-up may vary largely between clinicians and centres. We aimed to present an overview of available diagnostic modalities and describe current surveillance practices by cardiologists taking care of adults with CHD (ACHD).Methods and results: A questionnaire was used to assess the frequency cardiologists treating ACHD for at least one year administrated the most common diagnostic tests for ACHD. The most frequently employed diagnostic modalities were ECG and echocardiography for both mild and moderate/severe CHD. Sixty-seven percent of respondents reported that they routinely address psychosocial well-being. Conclusion: Differences exist between reported current clinical practice and published guidelines. This is particularly true for the care of patients with mild lesions. In addition, some differences exist between ESC and American guidelines, with more frequent surveillance suggested by the Americans.
UR - http://www.scopus.com/inward/record.url?scp=85190848214&partnerID=8YFLogxK
U2 - 10.1016/j.ijcard.2024.132022
DO - 10.1016/j.ijcard.2024.132022
M3 - Article
C2 - 38636602
AN - SCOPUS:85190848214
SN - 0167-5273
VL - 407
JO - International Journal of Cardiology
JF - International Journal of Cardiology
M1 - 132022
ER -