Systematic analysis of the design, methodology, and patient population characteristics of the pediatric direct oral anticoagulant trials of venous thromboembolism treatment

Marisol Betensky*, Manuela Albisetti, Antithrombotic Trials Working Party of the ISTH SSC Subcommittee on Pediatric and Neonatal Thrombosis and Hemostasis, Tina Biss, Rukhmi V. Bhat, Leonardo R. Brandão, Thomas Diacovo, Paul Monagle, Leslie Raffini, Shoshana Revel-vilk, C. Heleen van Ommen, Hilary Whitworth, Neil A. Goldenberg, Christoph Male

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Background: 

The pediatric direct oral anticoagulation (DOAC) trials provide an opportunity to evaluate and characterize challenges in their design and execution to inform future antithrombotic trials. 

Objectives: 

To perform a systematic review of pediatric DOAC trials for the treatment of venous thromboembolism to critically appraise their methodology and understand the feasibility and challenges. Methods: We performed a systematic search of MEDLINE, EMBASE, the Cochrane Library, and ClinicalTrials.gov (January 2002 to December 2022). Studies reporting the results of interventional trials of a DOAC for the treatment of acute venous thromboembolism in children and their respective design papers were included. Trial registration information was reviewed in ClinicalTrials.gov. Discrepancies in study design, targeted populations, sample size, and analyses between planned and actual trial conduct were examined qualitatively. 

Results: 

Five published studies and unpublished data for 2 additional trials were included. All trials had modifications to their design or methodology and discrepancies between the trial's registration and the final published study, suggesting feasibility challenges. Modifications to the eligibility criteria, changes in sample size, challenges with the recruitment of younger patients, and an enrolled population not matching the clinical target population were identified for all trials. Discrepancies in outcome reporting, particularly for secondary endpoints, were also common. 

Conclusion: 

DOAC trials experienced feasibility challenges that led to design or methodology modifications. Future pediatric antithrombotic trials will need to be adaptive in their design, prioritize enrollment of younger children and input from clinicians providing care to target populations, ensure that enrolled populations match the clinical population, and select clinically meaningful endpoints.

Original languageEnglish
Pages (from-to)1315-1331
Number of pages17
JournalJournal of Thrombosis and Haemostasis
Volume23
Issue number4
Early online date9 Jan 2025
DOIs
Publication statusPublished - Apr 2025

Bibliographical note

Publisher Copyright:
© 2025 International Society on Thrombosis and Haemostasis

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