TY - JOUR
T1 - The challenges of research data management in cardiovascular science
T2 - a DGK and DZHK position paper—executive summary
AU - Steffens, Sabine
AU - Schröder, Katrin
AU - Krüger, Martina
AU - Maack, Christoph
AU - Streckfuss-Bömeke, Katrin
AU - Backs, Johannes
AU - Backofen, Rolf
AU - Baeßler, Bettina
AU - Devaux, Yvan
AU - Gilsbach, Ralf
AU - Heijman, Jordi
AU - Knaus, Jochen
AU - Kramann, Rafael
AU - Linz, Dominik
AU - Lister, Allyson L.
AU - Maatz, Henrike
AU - Maegdefessel, Lars
AU - Mayr, Manuel
AU - Meder, Benjamin
AU - Nussbeck, Sara Y.
AU - Rog-Zielinska, Eva A.
AU - Schulz, Marcel H.
AU - Sickmann, Albert
AU - Yigit, Gökhan
AU - Kohl, Peter
N1 - Publisher Copyright:
© The Author(s) 2023.
PY - 2024/5
Y1 - 2024/5
N2 - The sharing and documentation of cardiovascular research data are essential for efficient use and reuse of data, thereby aiding scientific transparency, accelerating the progress of cardiovascular research and healthcare, and contributing to the reproducibility of research results. However, challenges remain. This position paper, written on behalf of and approved by the German Cardiac Society and German Centre for Cardiovascular Research, summarizes our current understanding of the challenges in cardiovascular research data management (RDM). These challenges include lack of time, awareness, incentives, and funding for implementing effective RDM; lack of standardization in RDM processes; a need to better identify meaningful and actionable data among the increasing volume and complexity of data being acquired; and a lack of understanding of the legal aspects of data sharing. While several tools exist to increase the degree to which data are findable, accessible, interoperable, and reusable (FAIR), more work is needed to lower the threshold for effective RDM not just in cardiovascular research but in all biomedical research, with data sharing and reuse being factored in at every stage of the scientific process. A culture of open science with FAIR research data should be fostered through education and training of early-career and established research professionals. Ultimately, FAIR RDM requires permanent, long-term effort at all levels. If outcomes can be shown to be superior and to promote better (and better value) science, modern RDM will make a positive difference to cardiovascular science and practice. The full position paper is available in the supplementary materials.
AB - The sharing and documentation of cardiovascular research data are essential for efficient use and reuse of data, thereby aiding scientific transparency, accelerating the progress of cardiovascular research and healthcare, and contributing to the reproducibility of research results. However, challenges remain. This position paper, written on behalf of and approved by the German Cardiac Society and German Centre for Cardiovascular Research, summarizes our current understanding of the challenges in cardiovascular research data management (RDM). These challenges include lack of time, awareness, incentives, and funding for implementing effective RDM; lack of standardization in RDM processes; a need to better identify meaningful and actionable data among the increasing volume and complexity of data being acquired; and a lack of understanding of the legal aspects of data sharing. While several tools exist to increase the degree to which data are findable, accessible, interoperable, and reusable (FAIR), more work is needed to lower the threshold for effective RDM not just in cardiovascular research but in all biomedical research, with data sharing and reuse being factored in at every stage of the scientific process. A culture of open science with FAIR research data should be fostered through education and training of early-career and established research professionals. Ultimately, FAIR RDM requires permanent, long-term effort at all levels. If outcomes can be shown to be superior and to promote better (and better value) science, modern RDM will make a positive difference to cardiovascular science and practice. The full position paper is available in the supplementary materials.
UR - http://www.scopus.com/inward/record.url?scp=85174246973&partnerID=8YFLogxK
U2 - 10.1007/s00392-023-02303-3
DO - 10.1007/s00392-023-02303-3
M3 - Review article
C2 - 37847314
AN - SCOPUS:85174246973
SN - 1861-0684
VL - 113
SP - 672
EP - 679
JO - Clinical Research in Cardiology
JF - Clinical Research in Cardiology
IS - 5
ER -