The chronic disease Self-Management Programme: A phenomenological study for empowering vulnerable patients with chronic diseases included in the EFFICHRONIC project

Dallal Fracso, Gérard Bourrel, Christian Jorgensen, Hélène Fanton, Hein Raat, Alberto Pilotto, Graham Baker, Marta M. Pisano, Rosanna Ferreira, Verushka Valsecchi, Yves Marie Pers, Agnes Oude Engberink*

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

9 Citations (Scopus)
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Abstract

Introduction: The Chronic Disease Self-Management Programme (CDSMP) has resulted in improved health outcomes for patients. However, research has focused mainly on those with chronic conditions and has not extensively explored prevention programmes targeting individuals with specific vulnerability profiles. Aim: This study aimed to understand the effects of the CDSMP on the lived experience of vulnerable patients included in the EFFICHRONIC project in France, based on their needs and expectations before and after participation. Methods: We conducted a qualitative phenomenological semio-pragmatic study based on 37 in-depth interviews with 20 patients (20 before/17 after CDSMP). Results: By transforming existential dimensions (identity, relationship with others and bodily experience), chronic illness generates new needs in the vulnerable person. By resonating with the expectations and needs of participants, the CDSMP induces motivation and a sense of belonging to a community of peers. It has enabled the participants to become actors of their own health until empowerment. Although some limitations are reported, the programme has awakened a desire in the participants to take better care of their health and to develop personal skills with, for some, a desire to become involved in health education. Conclusion: Our phenomenological approach highlighted the resonance between the programme (its design and implementation) and the lived experience of patients, as an effective element of empowerment. This necessitates training the facilitators to elicit the lived experience of patients. Furthermore, as a patient-centred approach is required, the facilitators need to learn how to adapt the design of the programme to the singularity of the patient. Patient or Public Contribution: Patients provided the data that were collected through in-depth interviews, and their experiences before and after the programme were analysed.

Original languageEnglish
Pages (from-to)947-958
Number of pages12
JournalHealth Expectations
Volume25
Issue number3
DOIs
Publication statusPublished - Jun 2022

Bibliographical note

Funding Information:
The authors gratefully acknowledge all patients and leaders involved in the project. The study was supported by the European Union Horizon 2020 Programme (EFFICHRONIC project, grant agreement #: 738127). The materials presented and views expressed here are the responsibility of the authors only. The EU Commission takes no responsibility for any use made of the information set out. We acknowledge support from the University of Montpellier and University Hospital of Montpellier. The authors also acknowledge the ARS Occitanie for their helpful support.

Funding Information:
The authors gratefully acknowledge all patients and leaders involved in the project. The study was supported by the European Union Horizon 2020 Programme (EFFICHRONIC project, grant agreement #: 738127). The materials presented and views expressed here are the responsibility of the authors only. The EU Commission takes no responsibility for any use made of the information set out. We acknowledge support from the University of Montpellier and University Hospital of Montpellier. The authors also acknowledge the ARS Occitanie for their helpful support.

Publisher Copyright:
© 2022 The Authors. Health Expectations published by John Wiley & Sons Ltd.

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