The eurreca project as a model for data access and governance policies for rare disease registries that collect clinical outcomes

SR Ali, J Bryce, LE Tan, O Hiort, AM Pereira, Erica Akker, NM Appelman-Dijkstra, J Bertherat, M (Martine) Cools, OM Dekkers, Y Kodra, L Persani, A Smyth, C Smythe, D Taruscio, S Faisal Ahmed

Research output: Contribution to journalArticleAcademicpeer-review

16 Citations (Scopus)
26 Downloads (Pure)
Original languageEnglish
Article number8743
Pages (from-to)1-12
Number of pages12
JournalInternational Journal of Environmental Research and Public Health
Issue number23
Publication statusPublished - 2020

Research programs

  • EMC MM-01-54-01
  • EMC MM-03-24-01

Cite this