The eXpectations of Parents regarding Anesthesiology Study (XPAS) from a parental perspective: a two-phase observational cross-sectional cohort study

Daphne J.T. Sjauw, Karolijn Dulfer, Camille E. van Hoorn, Vivi Buijs, Liesbeth de Bruijn, Bente W.M. Reijtenbagh, Virginia E. Tangel, Jurgen C. de Graaff*

*Corresponding author for this work

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Abstract

Background: 

Uncertainty concerning anesthetic procedures and risks in children requiring anesthesia may cause concerns in parents and caregivers. 

Aims: 

To explore parental expectations and experiences regarding their child's anesthesia using questionnaires designed with parental input. 

Methods: 

This observational cross-sectional cohort study included parents (including caregivers) of children undergoing anesthesia in a tertiary pediatric referral university hospital. The study consisted of two phases. In Phase 1, we developed three questionnaires with parental involvement through a focus group discussion and individual interviews. The questionnaires focused on parental satisfaction, knowledge, concerns, and need for preparation regarding their child's anesthesia. In Phase 2, independent samples of parents completed the questionnaires at three time points: before the preanesthesia assessment (T1), 2 days after the preanesthesia assessment (T2), and 4 days after the anesthetic procedure (T3). 

Results: 

In Phase 1, 22 parents were involved in the development of the questionnaires. The three questionnaires contained 43 questions in total, of which 10 had been proposed by parents. In Phase 2, 78% (474 out of 934) parents participated at T1, 36% (610 out of 1705), at T2 and 34% (546 out of 1622) at T3. Parental satisfaction scores were rated on a visual analogue scale for the preanesthesia assessment with a median of 87/100, and with a median of 90/100 for the anesthetic procedure (0: not satisfied and 100: satisfied). Parental concerns were rated with a median of 50/100 (0: no concerns and 100: extremely concerned). Parental answers from the questionnaire at T2 revealed significant knowledge deficits, with only 73% reporting that the anesthesiologist was a physician. Parents preferred to receive more information about the procedure, especially regarding the intended effects and side effects of anesthesia. 

Conclusions: 

Overall, parental satisfaction scores regarding the pediatric anesthesiology procedure were high, with a minority expressing concerns. Parents indicated a preference for their child's anesthesiologist to visit them both before and after the anesthetic procedure. Parental expectations regarding anesthesia did not completely correspond with the information provided; more information from the clinician about the intended effects and side effects of anesthesia was desired.

Original languageEnglish
Pages (from-to)1034-1074
Number of pages41
JournalPaediatric Anaesthesia
Volume33
Issue number12
Early online date31 Aug 2023
DOIs
Publication statusPublished - Dec 2023

Bibliographical note

Funding Information:
This study was supported by the Erasmus Medical Center‐Sophia Children's Hospital, Rotterdam, The Netherlands.

Publisher Copyright:
© 2023 The Authors. Pediatric Anesthesia published by John Wiley & Sons Ltd.

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