The financial impact of a terminal cancer on patient′s families in Colombia – A survey study

Esther de Vries, Oscar Elías Vergara-García, Sofía Karduss-Preciado, Valentina Baquero Castro, Sara Prieto Rodríguez, Martín Sánchez Forero, Valentina Beatriz Manjarres Tromp, Jose A. Calvache

Research output: Contribution to journalArticleAcademicpeer-review

4 Citations (Scopus)

Abstract

Aim of the study: The socio-economic impact of caring for a cancer patient in the family is unknown in Colombia. This survey aimed to evaluate the existence of financial burden caused by cancer on the caregiving families of terminally ill patients. Methods: We used the Covinsky Family Impact Scale in a telephone survey with families of patients who died from cancer between May 2019 and June 2020 in three Colombian hospitals. Results: We obtained answers of 176 caregivers, of whom 74.4 % indicated to have experienced at least one hardship of the Covinsky items. The most commonly reported financial hardship involved the use of all or most of the family savings for the care provided to the patient (45.6 %); 27.6 % indicated that a major source of family income was lost. A quarter (25 %) postponed educational or other important plans of family members and 10–11 % indicated to have moved to another home or postponed medical treatments. Conclusion: In Colombia, a country with universal health coverage, substantial financial impacts of terminal cancer care exist not only for patients, but also for family members and other caregivers. The system is failing to avoid financial toxicity of cancer among this group. Policy summary statement: Informal caregivers are of vital importance for cancer patients but also to the healthcare system, particularly in LMICs. It is very important for policy makers to consider the hardships, not only emotionally but also financially, that the care for a (terminally ill) cancer patient implies on caregivers.

Original languageEnglish
Article number100272
JournalJournal of Cancer Policy
Volume28
DOIs
Publication statusPublished - Jun 2021

Bibliographical note

Financing institution:
Supported by Minciencias, in the framework of the “777-2017 Convocatoria para proyectos de ciencia, tecnología e innovacion ´ en Salud
2017”, project CT-826-2018 - Decisiones m´edicas al final de la vida en
pacientes oncologicos ´ en Colombia”.

Publisher Copyright: © 2021 Elsevier Ltd

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