The relative value of carer and patient quality of life: A person trade-off (PTO) study

Hareth Al-Janabi*, Eve Wittenberg, Cam Donaldson, Werner Brouwer

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

12 Citations (Scopus)
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Carer quality of life is increasingly considered alongside patient quality of life in economic evaluation. Important questions remain about how to value carer and patient quality of life effects alongside one another. In this study, we estimated the relative social value of two conceptualisations of carer quality of life (health-related and care-related) compared to patient quality of life. Relative valuations were estimated using a person trade-off (PTO) study with 990 representative members of the UK public. Participants chose between hypothetical services that improved the quality of life of carers and patients, iterating to a point of indifference. Overall 84% of participants completing the task were willing to trade patient and carer quality of life effects. Relative to a reference point of 1 for patient health-related quality of life, we estimated a social value of 0.74 for carer health-related quality of life effects and 0.69 for carer care-related quality of life effects. In conclusion, public preferences appear to support the inclusion of carer quality of life effects within economic evaluation. The results provide a means to value different carer quality of life outcomes in economic evaluation, where such values are needed and deemed appropriate.

Original languageEnglish
Article number114556
JournalSocial Science and Medicine
Early online date10 Nov 2021
Publication statusPublished - Jan 2022

Bibliographical note

The authors are grateful to all those who participated in the study and PureProfile for delivering the survey. We also thank members of our lay panel (Jenny Coles, John Copping, Jacky Murphy and Jean Nicholls), University of Birmingham MDS lay advisers, Neil McHugh, Kara Hanson, and a scientific advisory panel (chaired by Jo Coast) for advice on the work. We thank the two anonymous reviewers for their helpful suggestions on the manuscript. This work was funded by a National Institute for Health Research (NIHR) Career Development Fellowship ( CDF-2015-08-025 ) awarded to Hareth Al-Janabi for this research project. This paper presents independent research funded by the National Institute for Health Research (NIHR). The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care.

Publisher Copyright:
© 2021 Elsevier Ltd


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