Translation of the Modified Polycystic Ovary Syndrome Questionnaire (mPCOSQ) and the Polycystic Ovary Syndrome Quality of Life Tool (PCOSQOL) in Dutch and Flemish Women with PCOS

Geranne Jiskoot*, Sara Somers*, Chloë De Roo, Dominic Stoop, Joop Laven

*Corresponding author for this work

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Abstract

This study aims to determine the test–retest reliability and to confirm the domain structures of the Dutch version of the modified polycystic ovary syndrome questionnaire (mPCOSQ) and the Polycystic Ovary Syndrome Quality of Life Scale (PCOSQOL) in Dutch and Flemish women with Polycystic Ovary Syndrome (PCOS). PCOS patients were contacted with a request to complete both questionnaires (including additional demographic questions) online in their home environment on T0 and on T1. The study was approved by the Ethics Committee of Erasmus Medical Centre and of Ghent University Hospital. In this study, 245 participants were included between January and December 2021. The mPCOSQ has excellent internal consistency (α: 0.95) and a high to excellent Intraclass Correlation Coefficient (ICC) for all six domains (ICC: 0.88–0.96). The PCOSQOL demonstrates excellent internal consistency (α: 0.96) and ICC (ICC: 0.91–0.96) for all four domains. The original six-factor structure of the mPCOSQ is partly confirmed. An extra domain is added to the PCOSQOL which included coping items. Most women have no preference for one of the two questionnaires (55.9%). In conclusion, The Dutch mPCOSQ and PCOSQOL are reliable and disease-specific QoL measures for women with PCOS. Both questionnaires are recommended for clinical practice.

Original languageEnglish
Article number3927
JournalJournal of Clinical Medicine
Volume12
Issue number12
DOIs
Publication statusPublished - 8 Jun 2023

Bibliographical note

Funding Information:
G.J. received an unrestricted research grant from the Waterloo Foundation and she received consultancy fees from Ferring. D.S. received unrestricted research grants from Ferring, Organon, Gedeon Richter, and Vitrolife. He also received consultancy fees from Ferring, Organon, Gedeon Richter, and Merck Serono. J.L. received unrestricted research grants from Ferring, Merck Serono, Roche Diagnostics, and Anshlabs. He also received consultancy fees from Ferring, Anshlabs, Roche Diagnostics, and Titus healthcare. The other authors declare no conflict of interest. ® ® ® ® ® ® ® ® ® ® ® ® ® ® ® ® ®

Publisher Copyright:
© 2023 by the authors.

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