Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary

Petra Baji; Werner B.F. Brouwer; NJA (Job) van Exel; Dominik Golicki; Valentina Prevolnik Rupel; Zsombor Zrubka; László Gulácsi; Valentin Brodszky; Fanni Rencz; Márta Péntek

doi:10.1007/s11136-020-02662-8

Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary

Petra Baji, Werner B.F. Brouwer, NJA (Job) van Exel, Dominik Golicki, Valentina Prevolnik Rupel, Zsombor Zrubka, László Gulácsi, Valentin Brodszky, Fanni Rencz, Márta Péntek^*

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

4 Citations (Scopus)

Abstract

PURPOSE: The CarerQol instrument has been designed and validated as an instrument able to measure both the positive and the negative impacts of caregiving on the quality of life of informal caregivers (CarerQol-7D), as well as their general happiness (CarerQol-VAS). The aim of this study was to assess the construct validity of the CarerQol in the Hungarian context.

METHODS: The CarerQol was translated into Hungarian. Subsequently, in a cross-sectional online survey, representative for the general Hungarian population (N = 1000), informal caregivers were identified (N = 149, female 51.2%, mean age 53.2). Clinical, convergent and discriminant validity of the CarerQol were evaluated in relation to the caregivers' and care recipients' EQ-5D-5L health status, and caregiving situation characteristics.

RESULTS: Average CarerQol-7D and CarerQol-VAS scores were 76.0 (SD 16.2) and 6.8 (SD 2.3), respectively. CarerQol-7D and CarerQol-VAS scores were significantly correlated with caregiving time (r = - 0.257; - 0.212), caregivers' EQ-5D-5L scores (r = 0.453; 0.326) and the CarerQol-7D also with care recipients' EQ-5D-5L scores (r = 0.247). CarerQol-7D scores differed significantly with relevant caregiving characteristics (e.g. nature and severity of care recipients' health status, sharing household) and both the CarerQol-7D and CarerQol-VAS with the overall care experience.

CONCLUSION: Our findings confirmed the validity of the Hungarian language version of the CarerQol and support the cross-cultural validity of the instrument. CarerQol-7D scores performed better in distinguishing caregiving situation characteristics than the general happiness measure CarerQol-VAS. Care recipients' health status was only weakly associated with informal caregivers' care-related quality of life and happiness. Caregivers' own health and caregiving circumstances were more strongly associated with these scores.

Original language	English
Pages (from-to)	629-641
Number of pages	13
Journal	Quality of Life Research
Volume	30
Issue number	2
DOIs	https://doi.org/10.1007/s11136-020-02662-8 https://doi.org/10.1007/s11136-020-02662-8
Publication status	Published - Feb 2021

Bibliographical note

Funding Information:
In connection with writing this article, PB and MP received grant support from the Higher Education Institutional Excellence Program of the Ministry for Innovation and Technology in the framework of the 'Financial and Retail Services' research project (NKFIH-1163-10/2019) at Corvinus University of Budapest. MP, VPR and DG are members of the EuroQol Group, a not-for-profit organisation that develops and distributes instruments that assess and value health. Other authors declared that they have no conflict of interest.

Funding Information:
Open access funding provided by Corvinus University of Budapest. This research was supported by the Higher Education Institutional Excellence Program of the Ministry of Human Capacities in the framework of the 'Financial and Retail Services' research project (20764-3/2018/FEKUTSTRAT) at Corvinus University of Budapest. Acknowledgements

Publisher Copyright:
© 2020, The Author(s).

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Baji, P., Brouwer, W. B. F., van Exel, NJA., Golicki, D., Prevolnik Rupel, V., Zrubka, Z., Gulácsi, L., Brodszky, V., Rencz, F., & Péntek, M. (2021). Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary. Quality of Life Research, 30(2), 629-641. https://doi.org/10.1007/s11136-020-02662-8, https://doi.org/10.1007/s11136-020-02662-8

@article{fc11a36b71494bfba04f3e724a946221,

title = "Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary",

abstract = "PURPOSE: The CarerQol instrument has been designed and validated as an instrument able to measure both the positive and the negative impacts of caregiving on the quality of life of informal caregivers (CarerQol-7D), as well as their general happiness (CarerQol-VAS). The aim of this study was to assess the construct validity of the CarerQol in the Hungarian context.METHODS: The CarerQol was translated into Hungarian. Subsequently, in a cross-sectional online survey, representative for the general Hungarian population (N = 1000), informal caregivers were identified (N = 149, female 51.2%, mean age 53.2). Clinical, convergent and discriminant validity of the CarerQol were evaluated in relation to the caregivers' and care recipients' EQ-5D-5L health status, and caregiving situation characteristics.RESULTS: Average CarerQol-7D and CarerQol-VAS scores were 76.0 (SD 16.2) and 6.8 (SD 2.3), respectively. CarerQol-7D and CarerQol-VAS scores were significantly correlated with caregiving time (r = - 0.257; - 0.212), caregivers' EQ-5D-5L scores (r = 0.453; 0.326) and the CarerQol-7D also with care recipients' EQ-5D-5L scores (r = 0.247). CarerQol-7D scores differed significantly with relevant caregiving characteristics (e.g. nature and severity of care recipients' health status, sharing household) and both the CarerQol-7D and CarerQol-VAS with the overall care experience.CONCLUSION: Our findings confirmed the validity of the Hungarian language version of the CarerQol and support the cross-cultural validity of the instrument. CarerQol-7D scores performed better in distinguishing caregiving situation characteristics than the general happiness measure CarerQol-VAS. Care recipients' health status was only weakly associated with informal caregivers' care-related quality of life and happiness. Caregivers' own health and caregiving circumstances were more strongly associated with these scores.",

author = "Petra Baji and Brouwer, {Werner B.F.} and {van Exel}, {NJA (Job)} and Dominik Golicki and {Prevolnik Rupel}, Valentina and Zsombor Zrubka and L{\'a}szl{\'o} Gul{\'a}csi and Valentin Brodszky and Fanni Rencz and M{\'a}rta P{\'e}ntek",

note = "Funding Information: In connection with writing this article, PB and MP received grant support from the Higher Education Institutional Excellence Program of the Ministry for Innovation and Technology in the framework of the 'Financial and Retail Services' research project (NKFIH-1163-10/2019) at Corvinus University of Budapest. MP, VPR and DG are members of the EuroQol Group, a not-for-profit organisation that develops and distributes instruments that assess and value health. Other authors declared that they have no conflict of interest. Funding Information: Open access funding provided by Corvinus University of Budapest. This research was supported by the Higher Education Institutional Excellence Program of the Ministry of Human Capacities in the framework of the 'Financial and Retail Services' research project (20764-3/2018/FEKUTSTRAT) at Corvinus University of Budapest. Acknowledgements Publisher Copyright: {\textcopyright} 2020, The Author(s).",

year = "2021",

month = feb,

doi = "10.1007/s11136-020-02662-8",

language = "English",

volume = "30",

pages = "629--641",

journal = "Quality of Life Research",

issn = "0962-9343",

publisher = "Springer Netherlands",

number = "2",

}

Baji, P, Brouwer, WBF, van Exel, NJA, Golicki, D, Prevolnik Rupel, V, Zrubka, Z, Gulácsi, L, Brodszky, V, Rencz, F & Péntek, M 2021, 'Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary', Quality of Life Research, vol. 30, no. 2, pp. 629-641. https://doi.org/10.1007/s11136-020-02662-8, https://doi.org/10.1007/s11136-020-02662-8

Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary. / Baji, Petra; Brouwer, Werner B.F.; van Exel, NJA (Job) et al.
In: Quality of Life Research, Vol. 30, No. 2, 02.2021, p. 629-641.

Research output: Contribution to journal › Article › Academic › peer-review

TY - JOUR

T1 - Validation of the Hungarian version of the CarerQol instrument in informal caregivers

T2 - results from a cross-sectional survey among the general population in Hungary

AU - Baji, Petra

AU - Brouwer, Werner B.F.

AU - van Exel, NJA (Job)

AU - Golicki, Dominik

AU - Prevolnik Rupel, Valentina

AU - Zrubka, Zsombor

AU - Gulácsi, László

AU - Brodszky, Valentin

AU - Rencz, Fanni

AU - Péntek, Márta

N1 - Funding Information: In connection with writing this article, PB and MP received grant support from the Higher Education Institutional Excellence Program of the Ministry for Innovation and Technology in the framework of the 'Financial and Retail Services' research project (NKFIH-1163-10/2019) at Corvinus University of Budapest. MP, VPR and DG are members of the EuroQol Group, a not-for-profit organisation that develops and distributes instruments that assess and value health. Other authors declared that they have no conflict of interest. Funding Information: Open access funding provided by Corvinus University of Budapest. This research was supported by the Higher Education Institutional Excellence Program of the Ministry of Human Capacities in the framework of the 'Financial and Retail Services' research project (20764-3/2018/FEKUTSTRAT) at Corvinus University of Budapest. Acknowledgements Publisher Copyright: © 2020, The Author(s).

PY - 2021/2

Y1 - 2021/2

N2 - PURPOSE: The CarerQol instrument has been designed and validated as an instrument able to measure both the positive and the negative impacts of caregiving on the quality of life of informal caregivers (CarerQol-7D), as well as their general happiness (CarerQol-VAS). The aim of this study was to assess the construct validity of the CarerQol in the Hungarian context.METHODS: The CarerQol was translated into Hungarian. Subsequently, in a cross-sectional online survey, representative for the general Hungarian population (N = 1000), informal caregivers were identified (N = 149, female 51.2%, mean age 53.2). Clinical, convergent and discriminant validity of the CarerQol were evaluated in relation to the caregivers' and care recipients' EQ-5D-5L health status, and caregiving situation characteristics.RESULTS: Average CarerQol-7D and CarerQol-VAS scores were 76.0 (SD 16.2) and 6.8 (SD 2.3), respectively. CarerQol-7D and CarerQol-VAS scores were significantly correlated with caregiving time (r = - 0.257; - 0.212), caregivers' EQ-5D-5L scores (r = 0.453; 0.326) and the CarerQol-7D also with care recipients' EQ-5D-5L scores (r = 0.247). CarerQol-7D scores differed significantly with relevant caregiving characteristics (e.g. nature and severity of care recipients' health status, sharing household) and both the CarerQol-7D and CarerQol-VAS with the overall care experience.CONCLUSION: Our findings confirmed the validity of the Hungarian language version of the CarerQol and support the cross-cultural validity of the instrument. CarerQol-7D scores performed better in distinguishing caregiving situation characteristics than the general happiness measure CarerQol-VAS. Care recipients' health status was only weakly associated with informal caregivers' care-related quality of life and happiness. Caregivers' own health and caregiving circumstances were more strongly associated with these scores.

AB - PURPOSE: The CarerQol instrument has been designed and validated as an instrument able to measure both the positive and the negative impacts of caregiving on the quality of life of informal caregivers (CarerQol-7D), as well as their general happiness (CarerQol-VAS). The aim of this study was to assess the construct validity of the CarerQol in the Hungarian context.METHODS: The CarerQol was translated into Hungarian. Subsequently, in a cross-sectional online survey, representative for the general Hungarian population (N = 1000), informal caregivers were identified (N = 149, female 51.2%, mean age 53.2). Clinical, convergent and discriminant validity of the CarerQol were evaluated in relation to the caregivers' and care recipients' EQ-5D-5L health status, and caregiving situation characteristics.RESULTS: Average CarerQol-7D and CarerQol-VAS scores were 76.0 (SD 16.2) and 6.8 (SD 2.3), respectively. CarerQol-7D and CarerQol-VAS scores were significantly correlated with caregiving time (r = - 0.257; - 0.212), caregivers' EQ-5D-5L scores (r = 0.453; 0.326) and the CarerQol-7D also with care recipients' EQ-5D-5L scores (r = 0.247). CarerQol-7D scores differed significantly with relevant caregiving characteristics (e.g. nature and severity of care recipients' health status, sharing household) and both the CarerQol-7D and CarerQol-VAS with the overall care experience.CONCLUSION: Our findings confirmed the validity of the Hungarian language version of the CarerQol and support the cross-cultural validity of the instrument. CarerQol-7D scores performed better in distinguishing caregiving situation characteristics than the general happiness measure CarerQol-VAS. Care recipients' health status was only weakly associated with informal caregivers' care-related quality of life and happiness. Caregivers' own health and caregiving circumstances were more strongly associated with these scores.

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DO - 10.1007/s11136-020-02662-8

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Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary

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